Re: [epilepsy] Introducing ourselves

 

I'm sorry to read of your terrible misfortune - I will certainly pray for you and your family.  I have epilepsy and Crohns but thank God I work full time and lead a normal life, with the exception of driving as I haven't driven since my first seizure in November 2010.  I pray I will be seizure free for a full year so I can drive myself to work. 
 
Does your family have help in the community?  Family and friends?

From: Ed Fennell <efennell@nycap.rr.com>
To: epilepsy@yahoogroups.com
Sent: Monday, June 27, 2011 6:13 AM
Subject: [epilepsy] Introducing ourselves

 

Hi Everybody,

I am a grandfather of two grandchildren.

Haley, age 4 has epilepsy and a primary diagnosis of CDKL5, a genetic
mutation similar to Rett syndrome. In all likelihood she will not walk
or talk.

Emily, age 7 months, has short bowel syndrome, having lost all but about
8-9 centimeters of her small intestines at birth.

We write a blog that our friends around the world seem to like a lot.
Sometime it deals with our frustrations, sometimes pictures and
sometimes it gets pretty philosophical

Our last post was yesterday, it was entitled "We Have a Confession to
Make". <http://www.haleyandpoppy.com/>

Emily, Haley and Poppy

--
Ed Fennell
11 Shannon Ct
West Sand Lake, NY 12196
518-674-2714

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