I'm sorry to read of your terrible misfortune - I will certainly pray for you and your family. I have epilepsy and Crohns but thank God I work full time and lead a normal life, with the exception of driving as I haven't driven since my first seizure in November 2010. I pray I will be seizure free for a full year so I can drive myself to work.
Does your family have help in the community? Family and friends?
From: Ed Fennell <efennell@nycap.rr.com>
To: epilepsy@yahoogroups.com
Sent: Monday, June 27, 2011 6:13 AM
Subject: [epilepsy] Introducing ourselves
Hi Everybody,
I am a grandfather of two grandchildren.
Haley, age 4 has epilepsy and a primary diagnosis of CDKL5, a genetic
mutation similar to Rett syndrome. In all likelihood she will not walk
or talk.
Emily, age 7 months, has short bowel syndrome, having lost all but about
8-9 centimeters of her small intestines at birth.
We write a blog that our friends around the world seem to like a lot.
Sometime it deals with our frustrations, sometimes pictures and
sometimes it gets pretty philosophical
Our last post was yesterday, it was entitled "We Have a Confession to
Make". <http://www.haleyandpoppy.com/>
Emily, Haley and Poppy
--
Ed Fennell
11 Shannon Ct
West Sand Lake, NY 12196
518-674-2714
[Non-text portions of this message have been removed]
[Non-text portions of this message have been removed]
Monday, June 27, 2011
Re: [epilepsy] Introducing ourselves
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Just a friendly reminder: Please remember to sign your post and remember to clean up messages when you reply to them. This is especially important if you are on digest. This not only helps out the list owner but, it makes messages much easier to read when they arrive in our inboxes.
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