Thanks....
From: Steve <stephenpales@yahoo.com>
To: epilepsy@yahoogroups.com
Sent: Sunday, June 26, 2011 7:28 AM
Subject: [epilepsy] Re: change of medicatio
Hi Susan,
One thing common with me in the 24 hours after a seizure was loss of appetite. Even if I had played a few hours of tennis in the morning, biked 20 miles in the afternoon, then first thing after a shower took a quick nap. If after waking up I had a loss of appitite, I knew I had to have had a seizure! I knew I had to eat and sort tried to eat tiny pieces of food just to get it in me, that wasn't easy.. In time when the feeling went away, I was starving and really bigged out (smile). If I knew I had a seizure, or didn't know, that is how I learned I had to have had a seizure either when i was awake, or not awake.
Steve
--- In epilepsy@yahoogroups.com, Susan Wain <susan.wain@...> wrote:
>
> How do U know if U had a seizure in your sleep?
>
>
> From: Steve <stephenpales@...>
> To: epilepsy@yahoogroups.com
> Sent: Wednesday, June 22, 2011 6:28 PM
> Subject: [epilepsy] Re: change of medicatio
>
>
> Â
>
> Hi Susan,
>
> Way way back in time, early 90s, I tried Neurontin, I became Zomie!!! I told my Dr. I'm getting off it now, will try another med. That is when I tried Keprra and have been on it since.
>
> Now, that doesn't mean Neurontin can't work for you! All our bodies react differently to a med. Also, it takes time for our bodies to adjust to a new med, so give it time.
>
> How long have you been on it now? If so, what dosage did you start with, and what was the plan in time and dosage to increase dosage to a particular dosage? Interested hearing back from you.
>
> Just remember, everybody reacts differently to each med. And dosage. Keep in touch with us as to how it's working for you. take care, keep a smile on your face!
>
> Steve
>
> --- In epilepsy@yahoogroups.com, Susan Wain <susan.wain@> wrote:
> >
> > Steve......Did you ever try Neurontin? If so......did U have blurry vision?ÂÂ
> > How long did the blurry vision last?
> >
> >
> >
> >
> > ________________________________
> > From: Steve <stephenpales@>
> > To: epilepsy@yahoogroups.com
> > Sent: Sat, June 18, 2011 4:48:15 PM
> > Subject: [epilepsy] Re: change of medicatio
> >
> > ÂÂ
> > Generally in Illinois you need to be seizure free a year to drive. The laws in
> > Illinois very somewhat. Not driving for 20 years I really didn't think much of
> > driving again. I mean, wasn't trying to get so psyched up that if a seizure
> > accured, I would dive into depression. In all reality, sort of stayed mellow
> > taking life day by day trying to adjust to not thinking seizures 24/7. I had an
> > appointment with my epileptogist, was going to bring up driving later in the
> > appointment. well, the Dr sat down with me and said I have something important
> > to talk with you about. Quickly got quiet, his words where "it's about time you
> > start driving again". Well, the tears quickly rolled down my cheeks. He gave me
> > the paper work, walked out of his office and in the waiting room cried harder
> > and more than I ever did in my entire life! 2 weeks later had my permit, 2 weeks
> > later my license, and 3 weeks later bought a new Toyota Matrix '09! I've been
> > driving just over 3 years now!
> >
> > As far as being scared of having a seizure, as time goes on being seizure free,
> > very slowly you adapt to it in ways not able to explain in words, it can only be
> > felt in my heart. This may not make sense, but, it's still hard to absorb that
> > I've been seizure free 4 years, 3 months and 29 days! take care, keep a smile on
> > your face!
> >
> > Steve
> >
> > --- In epilepsy@yahoogroups.com, Susan Wain <susan.wain@> wrote:
> > >
> > > Steve: Do U drive and if so are you afraid that you may have a seizure and
> > > cause an accident?
> > >
> > >
> > >
> > >
> > > ________________________________
> > > From: Steve <stephenpales@>
> > > To: epilepsy@yahoogroups.com
> > > Sent: Sat, June 18, 2011 10:10:39 AM
> > > Subject: [epilepsy] Re: change of medicatio
> > >
> > > ÂÂÂ
> > >
> > > Hi Tim,
> > >
> > > How many different meds. Have you tried so far? Also remember, meds can stop
> > > your seizures but to this day there is no cure to epilepsy. I've been seizure
> > > free since 10-19-06 but I still and and always will have epilepsy till a cure
> > >is
> > >
> > > created. Meds aren't a cure, they are simply a way to keep seizures under
> > > control. Best of luck Tim.
> > >
> > > Steve
> > >
> > > --- In epilepsy@yahoogroups.com, TIMOTHY BALDWIN <tbb1@> wrote:
> > > >
> > > > Steve,
> > > > Maybe what FDA just approved earlier this week could be useful by people over
> > >
> > > > 16y.o. having uncontrolled refractory partial seizures by providing a better
> >
> > > > chance of curing my epilepsy.Potiga (ezogabine) which is the same as Trobalt
> >
> > > > (retigabine) as it's referred to in Europe,is the first medicine that will
> > >work
> > >
> > > >
> > > > to keep the brains potassium channel open.Allot of current medicines work
> > > >toward
> > > >
> > > > the sodium channel.Maybe they're targeting to wrong place in me.Afterward
> > >maybe
> > >
> > > >
> > > > I'll start driving if its prescribed and it works.Its different than anything
> > >
> > > > I'd ever tried for 37 years. Timothy Baldwin
> > > >
> > > >
> > > >
> > > > ________________________________
> > > > From: Steve <stephenpales@>
> > > > To: epilepsy@yahoogroups.com
> > > > Sent: Fri, June 17, 2011 5:55:14 PM
> > > > Subject: [epilepsy] Re: change of medicatio
> > > >
> > > >
> > > >
> > > > Hey, Mark,
> > > >
> > > > Never say never about driving again'!!!!!!! You have only had epilepsy just 5
> > >
> > > > years now, that all, You have no way of knowing what the future will bring
> > > you!
> > > >
> > > > Hey, in high school I never thought I would be able to survive as an adult
> > > > because of my learning disability. Then hell began when seizures began in
> > >1975.
> > >
> > > >
> > > > seizures couldn't get under control for the next 31 years. And now look back
> > >in
> > >
> > > >
> > > > time at the reality of being at the same job coming on 24 years next month.
> > >And
> > >
> > > >
> > > > this week hitting 4 2/3 years seizure free after my
> > > > LTL!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
> > > >
> > > > Mark, how long have you been at your current job now? How many people do you
> >
> > > > think would have loved to be working that long at the same job? Think of the
> >
> > > > glass being half full, not half empty.
> > > >
> > > >
> > > > And besides that, maybe a cure for epilepsy will come one day? Or, maybe
> > > > something else down the rode might control your seizures? Take care, keep a
> > > > smile on your face!
> > > >
> > > > Steve
> > > >
> > > > --- In epilepsy@yahoogroups.com, "MarkB" <thebakist@> wrote:
> > > > >
> > > > >
> > > > >
> > > > > Doris,
> > > > >
> > > > > I have pretty much given up hope of ever driving again. I have had epilepsy
> > >
> > > > >for five (?) years now, and have had seizures every four months like
> > > >clockwork.
> > > >
> > > > >The minimum for freedom from seizures here in VA is six months.
> > > > >
> > > > >
> > > > > I am moving back to NJ in a few months where the minimum period for freedom
> > >
> > > > >from seizures is 1 YEAR, but that is where I grew up and I miss my friends
> > >up
> > >
> > >
> > > > >there.
> > > > >
> > > > > --- In epilepsy@yahoogroups.com, "DorisY" <dorisellen@> wrote:
> > > > > >
> > > > > > I was wondering things about changing drugs we take. I have been on
> > > > > > Lamicatal for ages and take 400mg daily. I still get a couple of
> > > > > > nocturnal seizures during each month and experience super insomnia.
> > > > > > I am apprehensive about even asking for possible change because I kind
> > > > > > of think that would also mean a suspension of driving license for some
> > > >period
> > > >
> > > > >of time. Please share things you might have had with change of this kind.
> > > > >Thanks.
> > > > > > Doris
> > > > > >
> > > > >
> > > >
> > > >
> > > >
> > > >
> > > > [Non-text portions of this message have been removed]
> > > >
> > >
> > >
> > >
> > >
> > > [Non-text portions of this message have been removed]
> > >
> >
> >
> >
> >
> > [Non-text portions of this message have been removed]
> >
>
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