Susan,
I'd wondered if there were more seizures than I knew of.Since living alone with
no witness to tell me of it.A couple of times I had bite my tongue or inside of
cheek and wondered that since I didn't notice it when I bite,if I was just
having a seizure.A few times people saw me awake when I felt OK.Even though I
wasn't aware of my condition.Was told a couple of times that I was having one.I
believe them. Tim Baldwin
________________________________
From: Susan Wain <susan.wain@yahoo.com>
To: "epilepsy@yahoogroups.com" <epilepsy@yahoogroups.com>
Sent: Sat, June 25, 2011 3:00:37 PM
Subject: Re: [epilepsy] Re: change of medicatio
How do U know if U had a seizure in your sleep?
From: Steve <stephenpales@yahoo.com>
To: epilepsy@yahoogroups.com
Sent: Wednesday, June 22, 2011 6:28 PM
Subject: [epilepsy] Re: change of medicatio
Hi Susan,
Way way back in time, early 90s, I tried Neurontin, I became Zomie!!! I told my
Dr. I'm getting off it now, will try another med. That is when I tried Keprra
and have been on it since.
Now, that doesn't mean Neurontin can't work for you! All our bodies react
differently to a med. Also, it takes time for our bodies to adjust to a new
med, so give it time.
How long have you been on it now? If so, what dosage did you start with, and
what was the plan in time and dosage to increase dosage to a particular dosage?
Interested hearing back from you.
Just remember, everybody reacts differently to each med. And dosage. Keep in
touch with us as to how it's working for you. take care, keep a smile on your
face!
Steve
--- In epilepsy@yahoogroups.com, Susan Wain <susan.wain@...> wrote:
>
> Steve......Did you ever try Neurontin? If so......did U have blurry vision?Â
>
> How long did the blurry vision last?
>
>
>
>
> ________________________________
> From: Steve <stephenpales@...>
> To: epilepsy@yahoogroups.com
> Sent: Sat, June 18, 2011 4:48:15 PM
> Subject: [epilepsy] Re: change of medicatio
>
> Â
> Generally in Illinois you need to be seizure free a year to drive. The laws in
> Illinois very somewhat. Not driving for 20 years I really didn't think much of
> driving again. I mean, wasn't trying to get so psyched up that if a seizure
> accured, I would dive into depression. In all reality, sort of stayed mellow
> taking life day by day trying to adjust to not thinking seizures 24/7. I had an
>
> appointment with my epileptogist, was going to bring up driving later in the
> appointment. well, the Dr sat down with me and said I have something important
> to talk with you about. Quickly got quiet, his words where "it's about time you
>
> start driving again". Well, the tears quickly rolled down my cheeks. He gave me
>
> the paper work, walked out of his office and in the waiting room cried harder
> and more than I ever did in my entire life! 2 weeks later had my permit, 2
>weeks
>
> later my license, and 3 weeks later bought a new Toyota Matrix '09! I've been
> driving just over 3 years now!
>
> As far as being scared of having a seizure, as time goes on being seizure free,
>
> very slowly you adapt to it in ways not able to explain in words, it can only
>be
>
> felt in my heart. This may not make sense, but, it's still hard to absorb that
> I've been seizure free 4 years, 3 months and 29 days! take care, keep a smile
>on
>
> your face!
>
> Steve
>
> --- In epilepsy@yahoogroups.com, Susan Wain <susan.wain@> wrote:
> >
> > Steve: Do U drive and if so are you afraid that you may have a seizure
>and
>
> > cause an accident?
> >
> >
> >
> >
> > ________________________________
> > From: Steve <stephenpales@>
> > To: epilepsy@yahoogroups.com
> > Sent: Sat, June 18, 2011 10:10:39 AM
> > Subject: [epilepsy] Re: change of medicatio
> >
> > ÂÂ
> >
> > Hi Tim,
> >
> > How many different meds. Have you tried so far? Also remember, meds can stop
> > your seizures but to this day there is no cure to epilepsy. I've been seizure
>
> > free since 10-19-06 but I still and and always will have epilepsy till a cure
>
> >is
> >
> > created. Meds aren't a cure, they are simply a way to keep seizures under
> > control. Best of luck Tim.
> >
> > Steve
> >
> > --- In epilepsy@yahoogroups.com, TIMOTHY BALDWIN <tbb1@> wrote:
> > >
> > > Steve,
> > > Maybe what FDA just approved earlier this week could be useful by people
>over
>
> >
> > > 16y.o. having uncontrolled refractory partial seizures by providing a
>better
>
>
> > > chance of curing my epilepsy.Potiga (ezogabine) which is the same as
>Trobalt
>
>
> > > (retigabine) as it's referred to in Europe,is the first medicine that will
> >work
> >
> > >
> > > to keep the brains potassium channel open.Allot of current medicines work
> > >toward
> > >
> > > the sodium channel.Maybe they're targeting to wrong place in me.Afterward
> >maybe
> >
> > >
> > > I'll start driving if its prescribed and it works.Its different than
>anything
>
> >
> > > I'd ever tried for 37 years. Timothy Baldwin
> > >
> > >
> > >
> > > ________________________________
> > > From: Steve <stephenpales@>
> > > To: epilepsy@yahoogroups.com
> > > Sent: Fri, June 17, 2011 5:55:14 PM
> > > Subject: [epilepsy] Re: change of medicatio
> > >
> > >
> > >
> > > Hey, Mark,
> > >
> > > Never say never about driving again'!!!!!!! You have only had epilepsy just
>5
>
> >
> > > years now, that all, You have no way of knowing what the future will bring
> > you!
> > >
> > > Hey, in high school I never thought I would be able to survive as an adult
> > > because of my learning disability. Then hell began when seizures began in
> >1975.
> >
> > >
> > > seizures couldn't get under control for the next 31 years. And now look
>back
>
> >in
> >
> > >
> > > time at the reality of being at the same job coming on 24 years next month.
>
> >And
> >
> > >
> > > this week hitting 4 2/3 years seizure free after my
> > > LTL!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
> > >
> > > Mark, how long have you been at your current job now? How many people do
>you
>
>
> > > think would have loved to be working that long at the same job? Think of
>the
>
>
> > > glass being half full, not half empty.
> > >
> > >
> > > And besides that, maybe a cure for epilepsy will come one day? Or, maybe
> > > something else down the rode might control your seizures? Take care, keep a
>
> > > smile on your face!
> > >
> > > Steve
> > >
> > > --- In epilepsy@yahoogroups.com, "MarkB" <thebakist@> wrote:
> > > >
> > > >
> > > >
> > > > Doris,
> > > >
> > > > I have pretty much given up hope of ever driving again. I have had
>epilepsy
>
> >
> > > >for five (?) years now, and have had seizures every four months like
> > >clockwork.
> > >
> > > >The minimum for freedom from seizures here in VA is six months.
> > > >
> > > >
> > > > I am moving back to NJ in a few months where the minimum period for
>freedom
>
> >
> > > >from seizures is 1 YEAR, but that is where I grew up and I miss my friends
>
> >up
> >
> >
> > > >there.
> > > >
> > > > --- In epilepsy@yahoogroups.com, "DorisY" <dorisellen@> wrote:
> > > > >
> > > > > I was wondering things about changing drugs we take. I have been on
> > > > > Lamicatal for ages and take 400mg daily. I still get a couple of
> > > > > nocturnal seizures during each month and experience super insomnia.
> > > > > I am apprehensive about even asking for possible change because I kind
> > > > > of think that would also mean a suspension of driving license for some
> > >period
> > >
> > > >of time. Please share things you might have had with change of this kind.
> > > >Thanks.
> > > > > Doris
> > > > >
> > > >
> > >
> > >
> > >
> > >
> > > [Non-text portions of this message have been removed]
> > >
> >
> >
> >
> >
> > [Non-text portions of this message have been removed]
> >
>
>
>
>
> [Non-text portions of this message have been removed]
>
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