Steve......Did you ever try Neurontin? If so......did U have blurry vision?
How long did the blurry vision last?
________________________________
From: Steve <stephenpales@yahoo.com>
To: epilepsy@yahoogroups.com
Sent: Sat, June 18, 2011 4:48:15 PM
Subject: [epilepsy] Re: change of medicatio
Generally in Illinois you need to be seizure free a year to drive. The laws in
Illinois very somewhat. Not driving for 20 years I really didn't think much of
driving again. I mean, wasn't trying to get so psyched up that if a seizure
accured, I would dive into depression. In all reality, sort of stayed mellow
taking life day by day trying to adjust to not thinking seizures 24/7. I had an
appointment with my epileptogist, was going to bring up driving later in the
appointment. well, the Dr sat down with me and said I have something important
to talk with you about. Quickly got quiet, his words where "it's about time you
start driving again". Well, the tears quickly rolled down my cheeks. He gave me
the paper work, walked out of his office and in the waiting room cried harder
and more than I ever did in my entire life! 2 weeks later had my permit, 2 weeks
later my license, and 3 weeks later bought a new Toyota Matrix '09! I've been
driving just over 3 years now!
As far as being scared of having a seizure, as time goes on being seizure free,
very slowly you adapt to it in ways not able to explain in words, it can only be
felt in my heart. This may not make sense, but, it's still hard to absorb that
I've been seizure free 4 years, 3 months and 29 days! take care, keep a smile on
your face!
Steve
--- In epilepsy@yahoogroups.com, Susan Wain <susan.wain@...> wrote:
>
> Steve:Â Do U drive and if so are you afraid that you may have a seizure and
> cause an accident?
>
>
>
>
> ________________________________
> From: Steve <stephenpales@...>
> To: epilepsy@yahoogroups.com
> Sent: Sat, June 18, 2011 10:10:39 AM
> Subject: [epilepsy] Re: change of medicatio
>
> Â
>
> Hi Tim,
>
> How many different meds. Have you tried so far? Also remember, meds can stop
> your seizures but to this day there is no cure to epilepsy. I've been seizure
> free since 10-19-06 but I still and and always will have epilepsy till a cure
>is
>
> created. Meds aren't a cure, they are simply a way to keep seizures under
> control. Best of luck Tim.
>
> Steve
>
> --- In epilepsy@yahoogroups.com, TIMOTHY BALDWIN <tbb1@> wrote:
> >
> > Steve,
> > Maybe what FDA just approved earlier this week could be useful by people over
>
> > 16y.o. having uncontrolled refractory partial seizures by providing a better
> > chance of curing my epilepsy.Potiga (ezogabine) which is the same as Trobalt
> > (retigabine) as it's referred to in Europe,is the first medicine that will
>work
>
> >
> > to keep the brains potassium channel open.Allot of current medicines work
> >toward
> >
> > the sodium channel.Maybe they're targeting to wrong place in me.Afterward
>maybe
>
> >
> > I'll start driving if its prescribed and it works.Its different than anything
>
> > I'd ever tried for 37 years. Timothy Baldwin
> >
> >
> >
> > ________________________________
> > From: Steve <stephenpales@>
> > To: epilepsy@yahoogroups.com
> > Sent: Fri, June 17, 2011 5:55:14 PM
> > Subject: [epilepsy] Re: change of medicatio
> >
> >
> >
> > Hey, Mark,
> >
> > Never say never about driving again'!!!!!!! You have only had epilepsy just 5
>
> > years now, that all, You have no way of knowing what the future will bring
> you!
> >
> > Hey, in high school I never thought I would be able to survive as an adult
> > because of my learning disability. Then hell began when seizures began in
>1975.
>
> >
> > seizures couldn't get under control for the next 31 years. And now look back
>in
>
> >
> > time at the reality of being at the same job coming on 24 years next month.
>And
>
> >
> > this week hitting 4 2/3 years seizure free after my
> > LTL!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
> >
> > Mark, how long have you been at your current job now? How many people do you
> > think would have loved to be working that long at the same job? Think of the
> > glass being half full, not half empty.
> >
> >
> > And besides that, maybe a cure for epilepsy will come one day? Or, maybe
> > something else down the rode might control your seizures? Take care, keep a
> > smile on your face!
> >
> > Steve
> >
> > --- In epilepsy@yahoogroups.com, "MarkB" <thebakist@> wrote:
> > >
> > >
> > >
> > > Doris,
> > >
> > > I have pretty much given up hope of ever driving again. I have had epilepsy
>
> > >for five (?) years now, and have had seizures every four months like
> >clockwork.
> >
> > >The minimum for freedom from seizures here in VA is six months.
> > >
> > >
> > > I am moving back to NJ in a few months where the minimum period for freedom
>
> > >from seizures is 1 YEAR, but that is where I grew up and I miss my friends
>up
>
>
> > >there.
> > >
> > > --- In epilepsy@yahoogroups.com, "DorisY" <dorisellen@> wrote:
> > > >
> > > > I was wondering things about changing drugs we take. I have been on
> > > > Lamicatal for ages and take 400mg daily. I still get a couple of
> > > > nocturnal seizures during each month and experience super insomnia.
> > > > I am apprehensive about even asking for possible change because I kind
> > > > of think that would also mean a suspension of driving license for some
> >period
> >
> > >of time. Please share things you might have had with change of this kind.
> > >Thanks.
> > > > Doris
> > > >
> > >
> >
> >
> >
> >
> > [Non-text portions of this message have been removed]
> >
>
>
>
>
> [Non-text portions of this message have been removed]
>
[Non-text portions of this message have been removed]
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