Susan,
My vision got blurry in both eyes but the left eye was the worst.I lost vision
totally in the left eye but the doctor said if I would have told her sooner
about the blurry vision I could have save my sight in the left eye.Thats what I
get for ignoring it for a long time.
Trish (jiminycricketblue)
________________________________
From: Susan Wain <susan.wain@yahoo.com>
To: epilepsy@yahoogroups.com
Sent: Mon, June 20, 2011 10:19:39 AM
Subject: Re: [epilepsy] Re: change of medicatio
Trish: When U say lost vision....do U mean yur vision got blurry and you
couldn't see or your vision got worse with time?
________________________________
From: trish schobert <jiminycricketblue@yahoo.com>
To: epilepsy@yahoogroups.com
Sent: Mon, June 20, 2011 9:56:48 AM
Subject: Re: [epilepsy] Re: change of medicatio
Millie,
It was my doctor that said itwas from lamictol.
Trish (jiminycricketblue)
________________________________
From: Millie Myers <mylmy@gogreencroft.net>
To: epilepsy@yahoogroups.com
Sent: Mon, June 20, 2011 1:14:12 AM
Subject: Re: [epilepsy] Re: change of medicatio
Trish,
I wear bifocals and trifocals but I don't think
it is because of my meds. My age has some
thing to do with it. I can read my computer
without my glasses but can't read a word with
out my glasses to read the paper or a book.
Since I don't need the trifocals to read the
computer I think I will skip them for my next
glasses. I was over 50 when I got my first
glasses.
Millie
----- Original Message -----
From: trish schobert
To: epilepsy@yahoogroups.com
Sent: Monday, June 20, 2011 12:59 AM
Subject: Re: [epilepsy] Re: change of medicatio
I lost vision in my left eye while on it.I was 20/20 in both eyes now
I have to wear bifocals.
Trish (jiminycricketblue)
________________________________
From: Susan Wain <susan.wain@yahoo.com>
To: epilepsy@yahoogroups.com
Sent: Sun, June 19, 2011 4:00:52 PM
Subject: Re: [epilepsy] Re: change of medicatio
Has anyone had trouble with Lamictal re vision changes?
________________________________
From: TIMOTHY BALDWIN <tbb1@prodigy.net>
To: epilepsy@yahoogroups.com
Sent: Sat, June 18, 2011 9:54:11 PM
Subject: Re: [epilepsy] Re: change of medicatio
Steve,
I've tried about 27 different medicines.Right now I'm taking 300mgs of Vimpat
twice a day(=600mg daily) + 1000mgs of Keppra XR twice a day(=2000 daily).The
last time I had a complex-partial seizure was a year ago last last monday
(6/13/10).I've had just two simple-partials since then,which I'd never had
before.I hope to add Potiga while reducing Vimpat in half and maybe change it
further.I haven't thought of reducing Keppra XR,this seizure change seems to be
related to it;it could be that I'm just getting old.
Hope I'm lucky,
Tim Baldwin
________________________________
From: Steve <stephenpales@yahoo.com>
To: epilepsy@yahoogroups.com
Sent: Sat, June 18, 2011 10:10:39 AM
Subject: [epilepsy] Re: change of medicatio
Hi Tim,
How many different meds. Have you tried so far? Also remember, meds can stop
your seizures but to this day there is no cure to epilepsy. I've been seizure
free since 10-19-06 but I still and and always will have epilepsy till a cure is
created. Meds aren't a cure, they are simply a way to keep seizures under
control. Best of luck Tim.
Steve
--- In epilepsy@yahoogroups.com, TIMOTHY BALDWIN <tbb1@...> wrote:
>
> Steve,
> Maybe what FDA just approved earlier this week could be useful by people over
> 16y.o. having uncontrolled refractory partial seizures by providing a better
> chance of curing my epilepsy.Potiga (ezogabine) which is the same as Trobalt
> (retigabine) as it's referred to in Europe,is the first medicine that will work
>
>
>
>
>
>
> to keep the brains potassium channel open.Allot of current medicines work
>toward
>
> the sodium channel.Maybe they're targeting to wrong place in me.Afterward maybe
>
>
>
>
>
>
> I'll start driving if its prescribed and it works.Its different than anything
> I'd ever tried for 37 years. Timothy Baldwin
>
>
>
> ________________________________
> From: Steve <stephenpales@...>
> To: epilepsy@yahoogroups.com
> Sent: Fri, June 17, 2011 5:55:14 PM
> Subject: [epilepsy] Re: change of medicatio
>
>
>
> Hey, Mark,
>
> Never say never about driving again'!!!!!!! You have only had epilepsy just 5
> years now, that all, You have no way of knowing what the future will bring
you!
>
> Hey, in high school I never thought I would be able to survive as an adult
> because of my learning disability. Then hell began when seizures began in
>1975.
>
> seizures couldn't get under control for the next 31 years. And now look back
>in
>
> time at the reality of being at the same job coming on 24 years next month.
>And
>
> this week hitting 4 2/3 years seizure free after my
> LTL!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
>
> Mark, how long have you been at your current job now? How many people do you
> think would have loved to be working that long at the same job? Think of the
> glass being half full, not half empty.
>
>
> And besides that, maybe a cure for epilepsy will come one day? Or, maybe
> something else down the rode might control your seizures? Take care, keep a
> smile on your face!
>
> Steve
>
> --- In epilepsy@yahoogroups.com, "MarkB" <thebakist@> wrote:
> >
> >
> >
> > Doris,
> >
> > I have pretty much given up hope of ever driving again. I have had epilepsy
> >for five (?) years now, and have had seizures every four months like
>clockwork.
>
> >The minimum for freedom from seizures here in VA is six months.
> >
> >
> > I am moving back to NJ in a few months where the minimum period for freedom
> >from seizures is 1 YEAR, but that is where I grew up and I miss my friends up
> >there.
> >
> > --- In epilepsy@yahoogroups.com, "DorisY" <dorisellen@> wrote:
> > >
> > > I was wondering things about changing drugs we take. I have been on
> > > Lamicatal for ages and take 400mg daily. I still get a couple of
> > > nocturnal seizures during each month and experience super insomnia.
> > > I am apprehensive about even asking for possible change because I kind
> > > of think that would also mean a suspension of driving license for some
>period
>
> >of time. Please share things you might have had with change of this kind.
> >Thanks.
> > > Doris
> > >
> >
>
>
>
>
> [Non-text portions of this message have been removed]
>
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Monday, June 20, 2011
Re: [epilepsy] Re: change of medicatio
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