Yuck!
Both Tegretol and clonazepam make you zzzzzzzzzzzzzz..............!!! And then you added Tylenol w/codeine!! I know that alone knocks me right out! I'm on Trileptal and Zonegran now, but Keppra was the godsend for me. I started Keppra and got right off the Tegretol. No matter what you take, AEDs are designed to depress your nervous system, which is going to make you drowsy. I still run into problems trying for find words, even though I'm no longer on the drug from hell...umm...what's it called?? Oh yeah...Topamax :)
Get plenty of rest, drink lots of water, and then take another nap!! We need at least 8-10 hrs! Multi-vitamins with lots of B-vitamins are great as well.
elizabeth
----- Original Message -----
From: care_911@yahoo.com
To: epilepsy@yahoogroups.com
Sent: Tuesday, August 24, 2010 5:44 PM
Subject: [epilepsy] Help I'm a zombie
Hi...
It's been a long time since I posted here, but I am having a really bad day. My brain is foggy, my limbs and body just feel tired, I'm lethargic and just cannot move or get going to do anything, and my daughter's birthday party is Sept. 10, so I have a lot to do. Also my fiance's kids (including another autistic one)are coming from Mon-Fri next week so that will be exhausting and I need to keep working on the party prep while they are here.
I am pretty sure it's the clonazepam that is draining my energy and leaving me feeling unmotivated and listless. In addition to this, recently I have found myself when I am talking trying to find a word to articulate what I want to say (and I am normally a very articulate person) and I can't remember the word--normal, stupid, everyday words.
I lose my balance all the time. I am wasting so many hours just not being able to get up and do what I need to do. Part of it may be taking 1 muscle relaxant with my meds, but I try to be frugal about that because I know it can interact with clonazepam. I've taken 3 Tylenol 3's in order to counteract the sedative effect of the clonazepam and today it isn't working at all. My toe has been broken for 3 months now so I can't exercise so my physical pain is pretty bad (hence, the one muscle relaxant, and the extra T3's, although, right now it's just to give me some energy and motivation). I tried bringing it (clonazepam) from 3 down to 2 a day (1 mg tablets) because of the increase in my pain meds due to my toe and not being able to exercise. But then I had 3 seizures in one week, and possibly some absence seizures as well. Not anything big, mind you. But I had to increase it again recently. Now I'm a zombie and I don't know how to overcome it. Can't live like this, but although I don't know about any of the new meds, I do know that tegretol and clonazepam were the only drugs that worked for me--clonazepam was their last ditch effort before brain surgery when I was a child and they had exhausted all other possible medications, and combinations of medications. For me, then, it was "the miracle drug". But right now without a lot of trial and error this is what I know works. And I know all the tried-and-true don't work for me. But I have not even taken my 2nd clonazepam yet. My mother says it's like she got the real me back but although I'll definitely say it has reduced my irritability significantly and our relationship is far better, when I am like this I definitely don't feel like "me". I feel like the walking dead and I don't know how to counteract this. Having chronic pain I never have had the normal amount of stamina and energy that others my age have. But this is even worse.
OK and now... I just spent the last 20 minutes with my fiance's eldest son, who is 17 going on 18, and autistic, ranting and raving because he is angry and stressed out (he's that way a lot of the time) and has nothing to do. And being told that (because he was in a fight with his partner, he was saying that his partner has family and friends to talk to and the ability to get a job etc.) All things he doesn't have, and I said he had family (doesn't get along well with his mother) but he has his dad and me. So he says, yeah, well, he has his dad. I'm like, thanks a lot (J). He says well, you're not family. You're not family until he marries you. Never mind I've been in his life since he was 13 years old and came to live with his dad. And I'm the one he comes out and talks to while my fiance is at work. And I was there for him recently when he was going through stuff... And when he was questioning his sexuality and afraid to tell his dad... That just hurts.
Anyway, thanks for listening. I'm so stressed I haven't got anything done. Now I'm stressed because of my... whatever he figures he is to me. If anyone has any suggestions on how to counteract these side effects so I can function better, I'd really appreciate it.
[Non-text portions of this message have been removed]
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