Jennie
We were told in a mtg with our daughters Epileptologist that these were definitely not faked that no one could
fake them and were to be taken just as serious as the real one. It is just like someone with diabetes having
a seizure or some other health condition.
He also told us that most all of the people that do have Pseudo ones also have the real ones and the pseudo
ones just come and go depending on the circumstances. Our daughter use to be a Reg. Pyc. Nurse, and being in
hospital and hearing and seeing Dr.s giving her the run-around and talking to themselves saying they were all
in her head (blah blah blah) every time she saw a white object walk by or come in her room she would have
another one which was quite often. They were just Neurologists though and wasn't until she got to an
Epileptologist that she got help. They also have to take the same medication....possibly a little less, but
then again you never know when a real one will hit. They can look like the GM or whatever kind you have, act
the same and unless you have a VEEG and the proper DR. one who deals with epilepsy only you may not get the
proper help. This is the way it was with our daughter.
The ordinary Dr. would panic as they would watch her have 200+ seizures per day and would put her in Dr.
induced coma until she reached the city Dr. This the Epilept. said was a definite NO NO that he has seen
patients die from this.
Just my experience from watching them.
Julie
Julie Hope
epilepsyhealth@sasktel.net
http://www.2betrhealth.com
----- Original Message -----
From: <jennieshadow@yahoo.com>
To: <epilepsy@yahoogroups.com>
Sent: Friday, August 27, 2010 5:54 AM
Subject: Re: [epilepsy] Psychogenic seizures.
Wow thank you Trish, you have worked very hard and come so far out ahead. Congratulations.
I understand more now than before by far.
But are pseudo seizures truly intentionally faked?
I have both epi & pseudo
Seizures. Some of the seizures have to do with vein swelling that stops all oxygen & nourishment from getting
to parts of my brain & body depending where the veins are actively affected at the time.
Complex Partial Seizures epi were found in the left lobe that affects balance, emotions & communication.
I have also had the absence seizures evident to family for years.
But the tests are months out so by the time I get to test they are all gone.
Negro Dr told me 5+ years ago scientists found a Panic Attack in which they also found a true epileptic
seizure. I don't have a name for it, nor do I know what they call it. Apparently anxiety & Panic can bring
them on.
Never heard of a seizure counselor.
Sincerely,
Jennifer A Holland
Sent from my Verizon Wireless BlackBerry
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