Hello again Doris: JB was on Keppra also but when he moved from New York State
to Colorado the neurologist he saw there changed him to Lamictal and Triliptal.
JB also has the VNS but he still has complex-partial seizures about every two
weeks. That is why JB is still planning on surgery. I know he is 40 years and
can make his own decisions but he is still my youngest son and therefore "the
baby"!!! Thank you for your encouragement. People wear different colored
bracelets in support of various diseases (cancer is pink). I think epilepsy is
purple. Where can I find such a bracelet? The more people know about epilepsy
the better. Tessa
________________________________
From: DorisY <dorisellen@nc.rr.com>
To: epilepsy@yahoogroups.com
Sent: Wed, July 7, 2010 10:14:11 AM
Subject: [epilepsy] Re: JB
Hi Tessa,
Your note sure caught my attention. I also have a 40 year old
son, and he is epileptic too. He is on the Keppra and seizures
are well controlled. I also have had seizures since I had an auto accident at
age 17. I was on many different types of drugs and
finally almost 13 years ago, I went for left temporal lobectomy.
It completely stopped all seizures during the day, however it
was the start of nocturnal seizures. It is still a terrific
thing that I did this and I am super glad I did. I am still
taking drugs for this, presently Lamictal. A super big thing
to me was being able to get my drivers license back which I
lost ages ago. It had absolutely no effect on reading ability
and as you said if it did, it still would be super better to
have seizure control. Different side effects of many things,
like even drug effects, can be conquered in your own way of
acclimating. I sincerely wish the best and remember we're
all together.
Doris
--- In epilepsy@yahoogroups.com, Tessa Bennstrom <tessabennstrom@...> wrote:
>
> Hello: My 40 year old son, JB, has had complex-partial seizures since he was
>struck by a car at the age of 8. JB has lead a more or less independent life up
>to this point. JB has never been completely controlled on his medication. He
>has a cluster of seizures approximately every two weeks. JB is now being
>considered for surgery which will "significantly reduce" but may not eliminate
>his seizure activity. JB has gone through a battery of tests (PET, SPECT,
>MRI's) to determine the focal point of the seizure activity. It has been
>determined that the seizures originate at the temporal/occipital junction. The
>neurosurgeon said this is not a usual location. If JB goes ahead with the
>surgery he has been warned that removing that particular area could compromise
>his ability to read. I am wondering if anyone has had similar surgery and what
>the results were. I cannot deny that not being able to read would be
>devastating but to have my son with fewer
> seizures and, perhaps, a safer life would be wonderful. JB has read this
>e-mail. Epilepsy seems to be one of the most misunderstood diseases. Thank
>you. Tessa
>
>
>
>
> [Non-text portions of this message have been removed]
>
[Non-text portions of this message have been removed]
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