Re: [epilepsy] Re: Does This Happen To You? [Annette]

Hi Millie: I don't get Medicare I get "Minnesota Care" Because I am from Minnesota-- I getmy meds Cheap cuz the State pays for it and I pay a CO---Pay. Oh, I was taking to a friend and she said the seizures I was have were GM. But I don't understand I was sitting>>>> I thought the GM is ONLY when you fall to the floor?

From: mylmy@bnin.net <mylmy@bnin.net>
Subject: Re: [epilepsy] Re: Does This Happen To You? [Annette]
To: epilepsy@yahoogroups.com
Date: Saturday, March 28, 2009, 8:44 AM

Annette,

Before Medicare d -- I had been getting my meds almost free.
Dilantin (brand name) was free. Then Medicare D came in and
they changed it to generic. I had a complex partial-- or
something like it and my Dr. ordered the brand name. I had
been sz free for 4 years. I've been on a combination of Dilantin
and Phenabarb for over 20 years.

Millie

> Hi Millie : My Insurance that I get thru the State does't cover regular
> EP meds I was on it but now I sopose cuz the Country's pinching pennies
> they want to try me out on Generic .   I have been on these 2 types of
> Meds 4 years. Maybe I will have 2 b a Guinne Pig again   ( which I really
> don't) Maybe it takes longer/ who knows thanks 4 your reply.
> ~~Annette~~
>
> --- On Fri, 3/27/09, mylmy@bnin.net <mylmy@bnin.net> wrote:
>
>
> From: mylmy@bnin.net <mylmy@bnin.net>
> Subject: Re: [epilepsy] Re: Does This Happen To You? [Annette]
> To: epilepsy@yahoogroup s.com
> Date: Friday, March 27, 2009, 8:47 PM
>
>
>
>
>
>
> Anne,
>
> Generic meds for EP don't seem to work too well. I know I need
> to take the Brand name. It is more expensive but if it works--fine.
>
> Or maybe you need another med. There are 30 different kinds of meds.
> Or a combination. Each person has to find the one that works for them.
>
> Millie
>
>> Hi At   first it was Grandmal then I started haveing what are
>> called
>> Complex Partial, and Simple Partial I just called them Medium Seizures
>> or
>> Small Seizures cuz to me that is what they are to me also "Clusters"
>> haveing small ones right after another. I am sopose to take Lorazapam 1
>> mg. When it does that, But Latnight I was on the computer and I had 3
>> (
>> what I call) Complex Partial and very different I just sat at my chair
>> andjust shook and then my head hurt like my brain was rattled
>> (headache)
>> Then I read that Lamictial makes ya not sleepy I doesnt matter what
>> time
>> I take my meds I still can't fall asleep.   I am now on Both Generic
>> Keppra & Generic Lamictal    to me I think it isn't working cuz I have
>> not had these many seizures in years. ~Hope this answers your
>> questions~~      ~~Annette~~
>>
>> --- On Fri, 3/27/09, pat040394 <ltpat228@comcast. net> wrote:
>>
>>
>> From: pat040394 <ltpat228@comcast. net>
>> Subject: [epilepsy] Re: Does This Happen To You? [Annette]
>> To: epilepsy@yahoogroup s.com
>> Date: Friday, March 27, 2009, 5:18 PM
>>
>>
>>
>>
>>
>>
>> Annette - what kind of epilepsy were you diagnosed?
>>
>> ~~~~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~
>>
>> --- In epilepsy@yahoogroup s.com, Annette Holm <annetteholm69@ ...>
>> wrote:
>>>
>>> I don't really know What I do know is that I have G.M (grandmals, Cp
>>> -complex partial what I call med.  seizures   and Sp Simple Partial
>>> what I call little ones cuz they last only sec.) I have a V.N.S.
>>> Vagel Nerve Stimalator   I like it . going on 8 yrs now .
>>> ~~Annette~~
>>>
>>> --- On Wed, 3/25/09, pat040394 <ltpat228@.. .> wrote:
>>>
>>>
>>> From: pat040394 <ltpat228@.. .>
>>> Subject: [epilepsy] Re: Does This Happen To You?
>>> To: epilepsy@yahoogroup s.com
>>> Date: Wednesday, March 25, 2009, 7:09 PM
>>>
>>>
>>>
>>>
>>>
>>>
>>> Well I called my Neuro today and left a message with her Nurses about
>>> my
>>> episode.
>>> For me it's paramount as hopefully this will aide her in my diagnosis.
>>>
>>> What kind of epilepsy do you have?
>>>
>>> ~~~~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~
>>>
>>> --- In epilepsy@yahoogroup s.com, Annette Holm <annetteholm69@ ...>
>>> wrote:
>>> >
>>> > ok-- I was standing outside A Hospital   cuz my stepdaughter just
>>> had twins and felt weird I could feel my head turn to the right ( I
>>> knew it wasn't sopose to ) I new it was an involentary movement (
>>> there were other people standing near me) but didn't notice . which
>>> was ok don't want to freak them out ( some of the people know about
>>> my seizures)   it also was 2-3 pm.   and also I felt like I was
>>> spacy~~!! It just seemed really odd I sopose I should tell my neuro
>>> X-Cept I don't want her to(up) the meds . I hate that when they do
>>> that.
>>> >
>>> > --- On Wed, 3/25/09, pat040394 <ltpat228@ .> wrote:
>>> >
>>> >
>>> > From: pat040394 <ltpat228@ .>
>>> > Subject: [epilepsy] Re: Does This Happen To You?
>>> > To: epilepsy@yahoogroup s.com
>>> > Date: Wednesday, March 25, 2009, 5:19 PM
>>> >
>>> >
>>> >
>>> >
>>> >
>>> >
>>> > Please tell me, Annette, what exactly happened with you.
>>> >
>>> > My episode occured mid afternoon.
>>> >
>>> > ~~~~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~
>>> >
>>> > --- In epilepsy@yahoogroup s.com, Annette Holm <annetteholm69@ ...>
>>> wrote:
>>> > >
>>> > > Hi~~ Yes, this has happened to me about 3 wks ago, I wasn't at
>>> the
>>> computer, but I have noticed it a few times, I don't know what I'd
>>> call it I think it is a type of seizure cp-----sp ?   I don't know
>>> if this has happened to you besides being on the computer I have
>>> noticed when I play . certain games on the computer this happenes
>>> to me . ~~Annette~~ I cannot say about others cuz they are all
>>> different just like we are.
>>> > >
>>> > > --- On Wed, 3/25/09, pat040394 <ltpat228@ .> wrote:
>>> > >
>>> > >
>>> > > From: pat040394 <ltpat228@ .>
>>> > > Subject: [epilepsy] Does This Happen To You?
>>> > > To: epilepsy@yahoogroup s.com
>>> > > Date: Wednesday, March 25, 2009, 3:08 PM
>>> > >
>>> > >
>>> > >
>>> > >
>>> > >
>>> > >
>>> > > Last Sunday I was sitting here at my computer when it occured to me
>>> I was staring, then my neck and head started to pull/twitch to the
>>> right. I think when the pulling began, that's when I realized
>>> something was odd and I shook my body so it would stop. I really had
>>> to concentrate and force myself so my neck would go back right.
>>> > >
>>> > > I really can't say how long it lasted but maybe up to 30 seconds?
>>> > > I say this as when I stare, I truly don't know how much time goes
>>> by.
>>> > > Afterwards I felt worn out for some reason.
>>> > >
>>> > > As most of you know, I'm still being tested and haven't yet been
>>> diagnosed with epilepsy, although my Neurologist suspects absence
>>> petit mals.
>>> > >
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