Hi Millie : My Insurance that I get thru the State does't cover regular EP meds I was on it but now I sopose cuz the Country's pinching pennies they want to try me out on Generic . I have been on these 2 types of Meds 4 years. Maybe I will have 2 b a Guinne Pig again ( which I really don't) Maybe it takes longer/ who knows thanks 4 your reply. ~~Annette~~
--- On Fri, 3/27/09, mylmy@bnin.net <mylmy@bnin.net> wrote:
From: mylmy@bnin.net <mylmy@bnin.net>
Subject: Re: [epilepsy] Re: Does This Happen To You? [Annette]
To: epilepsy@yahoogroup
Date: Friday, March 27, 2009, 8:47 PM
Anne,
Generic meds for EP don't seem to work too well. I know I need
to take the Brand name. It is more expensive but if it works--fine.
Or maybe you need another med. There are 30 different kinds of meds.
Or a combination. Each person has to find the one that works for them.
Millie
> Hi At first it was Grandmal then I started haveing what are called
> Complex Partial, and Simple Partial I just called them Medium Seizures or
> Small Seizures cuz to me that is what they are to me also "Clusters"
> haveing small ones right after another. I am sopose to take Lorazapam 1
> mg. When it does that, But Latnight I was on the computer and I had 3 (
> what I call) Complex Partial and very different I just sat at my chair
> andjust shook and then my head hurt like my brain was rattled (headache)
> Then I read that Lamictial makes ya not sleepy I doesnt matter what time
> I take my meds I still can't fall asleep. I am now on Both Generic
> Keppra & Generic Lamictal to me I think it isn't working cuz I have
> not had these many seizures in years. ~Hope this answers your
> questions~~ ~~Annette~~
>
> --- On Fri, 3/27/09, pat040394 <ltpat228@comcast. net> wrote:
>
>
> From: pat040394 <ltpat228@comcast. net>
> Subject: [epilepsy] Re: Does This Happen To You? [Annette]
> To: epilepsy@yahoogroup s.com
> Date: Friday, March 27, 2009, 5:18 PM
>
>
>
>
>
>
> Annette - what kind of epilepsy were you diagnosed?
>
> ~~~~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~
>
> --- In epilepsy@yahoogroup s.com, Annette Holm <annetteholm69@ ...> wrote:
>>
>> I don't really know What I do know is that I have G.M (grandmals, Cp
>> -complex partial what I call med. seizures and Sp Simple Partial
>> what I call little ones cuz they last only sec.) I have a V.N.S.
>> Vagel Nerve Stimalator I like it . going on 8 yrs now .
>> ~~Annette~~
>>
>> --- On Wed, 3/25/09, pat040394 <ltpat228@.. .> wrote:
>>
>>
>> From: pat040394 <ltpat228@.. .>
>> Subject: [epilepsy] Re: Does This Happen To You?
>> To: epilepsy@yahoogroup s.com
>> Date: Wednesday, March 25, 2009, 7:09 PM
>>
>>
>>
>>
>>
>>
>> Well I called my Neuro today and left a message with her Nurses about my
>> episode.
>> For me it's paramount as hopefully this will aide her in my diagnosis.
>>
>> What kind of epilepsy do you have?
>>
>> ~~~~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~
>>
>> --- In epilepsy@yahoogroup s.com, Annette Holm <annetteholm69@ ...>
>> wrote:
>> >
>> > ok-- I was standing outside A Hospital cuz my stepdaughter just
>> had twins and felt weird I could feel my head turn to the right ( I
>> knew it wasn't sopose to ) I new it was an involentary movement (
>> there were other people standing near me) but didn't notice . which
>> was ok don't want to freak them out ( some of the people know about
>> my seizures) it also was 2-3 pm. and also I felt like I was
>> spacy~~!! It just seemed really odd I sopose I should tell my neuro
>> X-Cept I don't want her to(up) the meds . I hate that when they do
>> that.
>> >
>> > --- On Wed, 3/25/09, pat040394 <ltpat228@ .> wrote:
>> >
>> >
>> > From: pat040394 <ltpat228@ .>
>> > Subject: [epilepsy] Re: Does This Happen To You?
>> > To: epilepsy@yahoogroup s.com
>> > Date: Wednesday, March 25, 2009, 5:19 PM
>> >
>> >
>> >
>> >
>> >
>> >
>> > Please tell me, Annette, what exactly happened with you.
>> >
>> > My episode occured mid afternoon.
>> >
>> > ~~~~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~
>> >
>> > --- In epilepsy@yahoogroup s.com, Annette Holm <annetteholm69@ ...>
>> wrote:
>> > >
>> > > Hi~~ Yes, this has happened to me about 3 wks ago, I wasn't at the
>> computer, but I have noticed it a few times, I don't know what I'd
>> call it I think it is a type of seizure cp-----sp ? I don't know
>> if this has happened to you besides being on the computer I have
>> noticed when I play . certain games on the computer this happenes
>> to me . ~~Annette~~ I cannot say about others cuz they are all
>> different just like we are.
>> > >
>> > > --- On Wed, 3/25/09, pat040394 <ltpat228@ .> wrote:
>> > >
>> > >
>> > > From: pat040394 <ltpat228@ .>
>> > > Subject: [epilepsy] Does This Happen To You?
>> > > To: epilepsy@yahoogroup s.com
>> > > Date: Wednesday, March 25, 2009, 3:08 PM
>> > >
>> > >
>> > >
>> > >
>> > >
>> > >
>> > > Last Sunday I was sitting here at my computer when it occured to me
>> I was staring, then my neck and head started to pull/twitch to the
>> right. I think when the pulling began, that's when I realized
>> something was odd and I shook my body so it would stop. I really had
>> to concentrate and force myself so my neck would go back right.
>> > >
>> > > I really can't say how long it lasted but maybe up to 30 seconds?
>> > > I say this as when I stare, I truly don't know how much time goes
>> by.
>> > > Afterwards I felt worn out for some reason.
>> > >
>> > > As most of you know, I'm still being tested and haven't yet been
>> diagnosed with epilepsy, although my Neurologist suspects absence
>> petit mals.
>> > >
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