Hi Robert
Sorry you had so many issues with tegretol, I had to go the other way as I got older and slightly heavier, 1100 is the maximum I can take1200 makes me feel ill, very drowsy. I am on 500 mg of ceppra too, I take 600 mg tegretol morning and 500 at night and the ceppra is split evenly. Yes I don't know the french braille system but I am sure the braille on the boxes does not include the doses, I will double check though, the french and uk braille is totally different so have to learn the french system but won't bother now. I will be returning to live in the uk this year so once I have used my stock of square boxes I will be put on to the other boxes I assume. I don't like to run out of my medication. I have to have a blood test for the tegretol once a year, it is about due. But will leave it this year until just before I return so I have up to date papers.
Regards
Adrien
-----Original Message-----
From: epilepsy@yahoogroups.com [mailto:epilepsy@yahoogroups.com]
Sent: Saturday, March 28, 2015 1:06 AM
To: epilepsy@yahoogroups.com
Subject: RE: [epilepsy] my medication
I take 900mg/day. I used to take much more but had side effect problems, especially double vision at 1400mg. I was OK at 1200mg. Then it needed to be lowered as my blood counts were still not recovering. I went to 1100mg then 1000mg and I stuck there for some years. I had started to take the meds three times a day in an effort to reduce the double vision, which worked a bit to reduce the worst of it. So at 1000mg I was supplied with 400mg tabs to take morning and night and 200mg to take midday. I then asked if I could reduce to 900mg to try to reduce some of the early morning sedation (part of which was due to Mysoline it has to be said) so to start off with I simply snapped a 200mg tablet for midday. Later I was issued with 100mg Tegretol (ordinary Tegretol) and I just take that at midday with the 400mg Tegretol Prolonged Release morning and night.
I have noticed there is Braille on boxes but didn't know this fails to include dose.
In recent times, maybe for a year now, I have been issued with the proper UK issue packs of 56 Tegretol Prolonged Release. I think this must be something to do with the pound to euro exchange rate. Maybe it was cheaper to buy in parallel imports back along and relabel and now it isn't!
Rob
From: epilepsy@yahoogroups.com [mailto:epilepsy@yahoogroups.com]
Sent: 26 March 2015 15:51
To: epilepsy@yahoogroups.com
Subject: RE: [epilepsy] my medication
Hi Robert
This is interesting as I have to break my tegretol especially the 200 mg tablets as I only need to take 1100 mg a day, the doctor gave me 1200 but I find that too much, it makes me feel ill. The 1100 is sufficient along with my ceppra. You evidently get the same boxes as I get here in France, I just wish they would put in braille the dosage on the box along with the name, they are pretty good here though as most drugs do have braille on them.
Regards
Adrien
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