Wednesday, May 2, 2012

[epilepsy] Re: Seizures when asleep

 

Thanks for your time and experiences. It's so meaningful
when you actually hear things about others who actually relate
to things that are a part of my life too. I'll remember we're
all together and keep your messages as a part of this. Take care.
Doris

--- In epilepsy@yahoogroups.com, "D" <dvsayer@...> wrote:
>
> --- In epilepsy@yahoogroups.com, "DorisY" <dorisellen@> wrote:
> >
> snip>> I wonder how others who might have seizures when asleep handle this.<<snip
>
> Hi Doris,
>
> My husband has sleep seizures - tonic clonic as well as complex partials. They are mostly well controlled by meds, however he still has the occasional episode every few weeks.
>
> He also has sleep apnoea, so has a CPAP machine, which complicates things if he goes into (what I call) seizure mode, as I have to remove the mask so that I can try to prevent him from tongue biting, which is the worst part of his seizures.
>
> I think he does worry about going to sleep, particularly if he has had a recent seizure episode. I also have concerns, mostly related to what will happen if he has a seizure when I am away from home and not present to help him, turn him on his side after the seizure, etc.
>
> Having said this, he does tend to display a pragmatic attitude most of the time - basically: "what's the point in worrying about something I can't control?" which is probably sensible. No point in losing sleep over it. ;-)
>
> D Sayer
> Australia
>

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