Hello Steve:
I've been on Dilantin staright since 1969 & I was always UNDER 100lbs till I was 15 & under 200 I was 50. My Epilepsy started as a young child & I was on Dilantin till age 5 & then not on any medication till 1969 when my EPILEPSY came back to where I had to go back on anti-seizure medacation & have been since.
Jim
From: Steve <stephenpales@yahoo.com>
To: epilepsy@yahoogroups.com
Sent: Monday, May 23, 2011 8:09 PM
Subject: [epilepsy] Re: Dilantin & weight lost
Hi James,
Wish I was your age, I'm 53 (smile)! My epilepsy began back in 1975, was first put on Pheno. and Dilantin. I was on the Dilantin till 1988. Gosh, if I would have lost weight I would have been lighter the very light! I weigh allot more now than back then, I'm now 153 5'8", yes 153, the most I've ever weighed!!! I think back then just after high school I was in the mid 130s.
When on medications, weight should always be brought up to Drs. Very often Drs. will follow big weight changes allot by wanting to see more blood test results because of the difference. I'm not to surprised about being toxic on the same dosage with the weight loss.
My seizures weren't under control, was having mostly complex partials 1-7 each month on average. I had a LTL 4 years 7 months ago (smile). Since then have been seizure free, have been driving just over 3 years now (smile)!
Steve
--- In epilepsy@yahoogroups.com, "James C." <harken2@...> wrote:
>
> I don't know if anyone of you at my age of 51 went on a diet for the 1st time. Last October I started a weight loss plan for the 1st time.
> & I'm on Dilantin in march of this year I had lost 23 lbs I ended up being hospitalized for 3 days because of a TOXIC LEVEL & at that time they took me off the dose I was on & on the night befor they gave my 350 mgs of DILANTIN & with my Dr. concent put me on 400 mgs a day (I was on 500 mgs when I went in) Since then I've as of today I've lost another 14 lbs when I started I told my self that I wanted to lose a total of 67 lbs & at this am weight check I've lost a grand total of 37 lbs. I learned back in 1980 when I was hospitalized because of my EPILEPSY they found my dilantin level low & heard the Dr. at the hospital the formal used to figer out my doseage was figuard at 50mgs for every 70kgs & I spoke to my Dr. earlyier this month & asked if they're still useing this scale for determinateing doseage & he said yes & to set the starter dose for the patient. I'd like to hear from others & their experince when they tryed to lose weight. As a child I was
always under weight for my age & height.
>
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