Hi John,
Welcome to the group! You are among friends here, believe me! Ask us the million and one questions you have!!! Hey, don't hold back from saying or asking anything!
My first seizure was a grand mal when I was 15 months old, while I had a high fever. I didn't have another seizure till I was just out of high school back in 1975. Since then my seizures stayed with me. I had mostly complex partial seizures.
There are many parents in the group who are in your shoes, you will notice responses to your post in the coming days. You will quickly realize how much support you have here!!!
You mentioned he is on Keppra. I've been on Keppra since it first came to the market maybe 6 or 8 years ago? I'm also on Trileptal.
My seizures just couldn't get under control all these years. 3 1/3 years ago I had a left temporal lobectomy surgery to try and stop my seizures. So far its worked and have been seizure free since.
All these years I've been very active in sports, have been at the same job for 22 1/2 years now!
Why not take a look at these web sites in learning more about epilepsy. Look at my.epilepsy.
Steve
--- In epilepsy@yahoogroup
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> My 13 month old baby was just diagnosed in early February with partial focal seizures that generalize into grand mal seizures. The original diagnosis was atypical febrile seizures since his came with no temperature and his first seizure came in a cluster of 5 grand mals over a days time. A month later he had 18 in a 3 days period and was put in the PICU of our local hospital - 6 long days!.
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> He had a 24 hour VEEG which showed activity in the right temporal lobe and an MRI which showed underdevelopment.
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> He went through 2 meds at the hospital and finally given Keppra whiched stopped them. We went home on 2.5 ml 2 X day. I thought I saw absense seizures - he would stare off and be unresponsive periodically throughout the day. He upped him to 3.5 and now we are not seeing that anymore.
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> Anyways that is our story so far. So much in just a months period. I guess the best news for us is that Chase is right on track developmentally. He is happy healhy little guy.
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> Our neuro said to live day to day. Wont know the future till we get there. I hope we are one of the kids who outgrows this. Very frustrating that there are no solid answers.
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> I am not sure how the group works. If it is mostly adults with epilepsy. I dont want to get in the way asking alot of questions relating to children.
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