My 13 month old baby was just diagnosed in early February with partial focal seizures that generalize into grand mal seizures. The original diagnosis was atypical febrile seizures since his came with no temperature and his first seizure came in a cluster of 5 grand mals over a days time. A month later he had 18 in a 3 days period and was put in the PICU of our local hospital - 6 long days!.
He had a 24 hour VEEG which showed activity in the right temporal lobe and an MRI which showed underdevelopment.
He went through 2 meds at the hospital and finally given Keppra whiched stopped them. We went home on 2.5 ml 2 X day. I thought I saw absense seizures - he would stare off and be unresponsive periodically throughout the day. He upped him to 3.5 and now we are not seeing that anymore.
Anyways that is our story so far. So much in just a months period. I guess the best news for us is that Chase is right on track developmentally. He is happy healhy little guy.
Our neuro said to live day to day. Wont know the future till we get there. I hope we are one of the kids who outgrows this. Very frustrating that there are no solid answers.
I am not sure how the group works. If it is mostly adults with epilepsy. I dont want to get in the way asking alot of questions relating to children.
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