This is a topic that has much risk for getting out of control very quickly.
For anyone with any type of seizures--the reality is we can never
compare our situation to anyone else's. Our life is our life. It
effects each of our lives so differently that we cannot judge our
situation in comparison to each others.
I will only give my own story as an example. I do not suffer from
generalized tonic clonic seizures-but have had many marks, black blue
and otherwise, was stared at pointed at and even laughed at by children
and adults because of the bizarre things I have done. I was told to stop
swimming alone due to the risk and to never take a bath when home
alone. All of this from the multiple daily seizures I was having. It
never would have mattered to me how many people did or didn't notice my
seizures, regardless of the type--they debilitated my life to the point
I finally needed to have a right temporal lobectomy.
To me my story is MY story and I never compare it to anyone else's
because we will each always find a way to make our story worse or
better. If we began playing the "grass is greener" game in our lives we
start focusing on our circumstance so much that we lose sight of the
fact that our lives contain so much more then this one thing.
I share my story because through that we all learn and find support when
we feel we are ready to fall.
Kelly P
Tammy Wolfgram wrote:
> Hi Uhura,
>
> Speaking as the mother of someone with generalized tonic clonic
> seizures, I think you are very fortunate to have seizures that others
> don't notice. No sore muscles, cuts or abrasions, black and blue
> marks or broken teeth. Your risk of falling or drowning or other
> serious injury are also very low. I understand that you feel people
> may wonder "what's wrong with her" when you stand and do nothing for
> a period of time, but in the grand scheme of things that is not so
> bad. My daughter was taunted and made fun of in middle school because
> she had several seizures there. I would have given anything for her
> to only have seizures that no one else noticed, to be honest with you.
>
> Please don't take offense. I just wanted to give you the perspective
> from the other side.
>
> Be happy with yourself.
> Tammy
>
>
>
>
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