just realized I need to learn how to post.. did not mean to 'lurk'
Joined for support as am a patient diagnosed with sleep disorders. i.e. sleep apnea, PLMD, PTSD, and narcolepsy, plus have some insomnia, FM. and menopause. Have gone to a local support group a couple years but that before I was diagnosed and many years ago. My goal is to help educate the public as well in some respects..
I am also using a CPAP.
Suspect I was born with one sleep disorder and the narcolepsy came on about puberty and the 3rd came on with the PTSD event from stress.
Diagnosed in 2001 just before my mom died.
Wondering why I am here? Ever visiting Neurologists in my past, but never a matching diagnosis.. I believe I have had long term intermitent? psychomotor partial complex seisures as this is the only explanation for some of my experiences. Some of the drugs I read about here I have been on in the past briefly.. I was once told that I do not have seisures because they do not occur often enough. Some of my experiences suggest different types of seisures.
for now my online name is
'Sandy'
Who is here?
this is my primary email account,
there are no aliases .. uhura102
was my online account from long ago and hadn't been changed so people would remember it was me.. perhaps I was wrong
so..
I suffer From Fibromyalgia, Chronic Pain, Irritable Bowel Syndrome, Sleep Apnea, (borderline undiagnosed and trying not to be diagnosed Diabetes), Insomnia, RLS, PLMD, Narcolepsy, Memory Impairment, PTSD,
(I don't know what RSD is but have RTS/rape trauma..), bad breath struggles/possibly due to celiac, Carpel Tunnel, Bladder Control Problems,...
Don't expect any of my Family, Friends to Join & Contribute or be supportive. I Hope others benefit from my presence on this List...
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