Thursday, October 18, 2012

RE: [epilepsy] Dave

 

I wondered if it was me or you! (Messages in triplicate!)

Yes, my computer "talks" to me. I use a program called JAWS, and the software is generally referred to as "screen reading" software.

It tells me any key I hit, and reads to me based on keystroke commands I give it.

Dave

Sweet Music is here! The sequel to The Attaché.

Read about it here, including an excerpt: http://www.authordavidbond.com/newest.php

"Like" David at his Facebook author page: <http://www.facebook.com/pages/David-Bond/161496407291957> David Bond

From: epilepsy@yahoogroups.com [mailto:epilepsy@yahoogroups.com] On Behalf Of Millie Myers
Sent: Thursday, October 18, 2012 9:47 AM
To: epilepsy@yahoogroups.com
Subject: Re: [epilepsy] Dave

Dave,

Sorry I see I sent it 3 times. That -- I'm sure you don't need.

Is it read to you?

Millie

----- Original Message -----
From: David Bond
To: epilepsy@yahoogroups.com <mailto:epilepsy%40yahoogroups.com>
Sent: Thursday, October 18, 2012 8:47 AM
Subject: RE: [epilepsy] Dave

Don't know if you caught it, but I'm blind. I of course can search, but not typically with tool bars or add-ons.

If you don't mind, a very brief explanation would suffice. At the moment, I'm creating my main story line components, and want to be updated on all things epileptic.

Thanks.

Dave

Sweet Music is here! The sequel to The Attaché.

Read about it here, including an excerpt: http://www.authordavidbond.com/newest.php

"Like" David at his Facebook author page: <http://www.facebook.com/pages/David-Bond/161496407291957> David Bond

From: epilepsy@yahoogroups.com <mailto:epilepsy%40yahoogroups.com> [mailto:epilepsy@yahoogroups.com <mailto:epilepsy%40yahoogroups.com> ] On Behalf Of Millie Myers
Sent: Thursday, October 18, 2012 8:39 AM
To: epilepsy@yahoogroups.com <mailto:epilepsy%40yahoogroups.com>
Subject: Re: [epilepsy] Dave

Dave,

A TIA is considered a small stroke. Put TIA in the Google Bar
and more of an explanation is given. Yahoo may have it also --
but I always use the Google bar for my dictionary.

If you don't have a Google bar-- write me and I will give a better
explanation.

Millie

----- Original Message -----
From: David Bond
To: epilepsy@yahoogroups.com <mailto:epilepsy%40yahoogroups.com> <mailto:epilepsy%40yahoogroups.com>
Sent: Thursday, October 18, 2012 7:49 AM
Subject: RE: [epilepsy] Dave and Liz

Millie, and all:

You mentioned, "TIA." I don't know what this is. Thanks for some explanation.

Dave

Sweet Music is here! The sequel to The Attaché.

Read about it here, including an excerpt: http://www.authordavidbond.com/newest.php

"Like" David at his Facebook author page: <http://www.facebook.com/pages/David-Bond/161496407291957> David Bond

From: epilepsy@yahoogroups.com <mailto:epilepsy%40yahoogroups.com> <mailto:epilepsy%40yahoogroups.com> [mailto:epilepsy@yahoogroups.com <mailto:epilepsy%40yahoogroups.com> <mailto:epilepsy%40yahoogroups.com> ] On Behalf Of Millie Myers
Sent: Thursday, October 18, 2012 12:49 AM
To: epilepsy@yahoogroups.com <mailto:epilepsy%40yahoogroups.com> <mailto:epilepsy%40yahoogroups.com>
Subject: [epilepsy] Dave and Liz

You are correct when you say that a lot of us don't know what causes our szs.

I've had EP for over 50 years and was pregnant with my second daughter
when I had my first sz; -- had my second sz when I was carrying my 3rd daughter.
The Dr. thought that PG and I didn't go well together. so I had my tubes tied--
thinking that would take care of the szs. My children are all 2 years apart. So
When my 3rd daughter was about 2 years old== I had another sz. That took me
30 miles away to the closest EEG at that time. That test told me that I had EP
and that I would be on drugs for the rest of my life. I then had 3 daughters, 2, 4,
and 6.

I had szs every year or more. I'm sorry I did not keep track of them and what
meds I was on. One time I was put in the hospital and the Dr. thought I had a TIA
but I couldn't see any difference between having a sz and having a TIA. I didn't
realize that were so much alike.

I've decided not to worry about what is causing it. I have it -- so I take my meds,
joined this group and learned a lot. A lot of you have EP so much worse than I do.
And because our szs are so different and the meds affect us differently -- I really
can't compare them. But I think we can learn from each other.

Good luck with your books. I'd like to read them.

Millie

----- Original Message -----
From: Liz Welker
To: epilepsy@yahoogroups.com <mailto:epilepsy%40yahoogroups.com> <mailto:epilepsy%40yahoogroups.com> <mailto:epilepsy%40yahoogroups.com>
Sent: Wednesday, October 17, 2012 6:09 PM
Subject: Re: [epilepsy] Author with questions

Hey, Dave!

I am an "author in training," LOL, and have also written a novel (manuscript) that includes two characters who have epilepsy.

You could approach it from almost any angle you want to. My cousin's hubby was 38 yo when he suddenly had a GM sz on a plane going across the country to visit his family. It was determined that scarring on his brain due to repeated concussions from college football was the culprit. He is now about 50 and under good control. I had my first sz as an infant (6 mo) due to forceps trauma during birth. Things such as infections and strokes can also trigger epilepsy, and about half don't have a known cause.

Hope I helped! Please ask anything.

Liz :)

________________________________
From: David Bond <dab007@comcast.net <mailto:dab007%40comcast.net> <mailto:dab007%40comcast.net> <mailto:dab007%40comcast.net> >
To: epilepsy@yahoogroups.com <mailto:epilepsy%40yahoogroups.com> <mailto:epilepsy%40yahoogroups.com> <mailto:epilepsy%40yahoogroups.com>
Sent: Wednesday, October 17, 2012 5:55 PM
Subject: [epilepsy] Author with questions

Hello, group!

I've been on this list for years, but I think this is the first time I've
posted. FYI, I was diagnosed with epilepsy back in the 90s after suffering
gran mal seizures for a number of years. I was on Lamictol (spelling??) for
several years, but back around 2000, switched to Keppra (spelling, again??).
Since this switch, I have been 100% seizure free, including not a single
aura.

I write Christian fiction, and my next project is the 3rd in a trilogy,.
Each of these books, while falling into the romance genre, involves a
medical sub-plot. The first is about a man who loses his eyesight, the
second about a woman who develops type 1 diabetes, and this final one, is
about a man who gets epilepsy. It so happens, I am blind, diabetic, and
epileptic.

I'd love a few comments about how my fictitious character gets epilepsy. I
can answer many questions from first-hand experience, but one question I
can't address involves how my character actually became epileptic. What I'd
like to do is incorporate my own experience into my character's experience.
I don't believe it was ever "officially" recorded, but I attribute my case
to suffering head injuries over the course of several years. I only remember
suffering a concussion once, after one of numerous automobile accidents, but
I believe either these crashes were due to a seizure, or due to lapsing into
a diabetic state of unconsciousness. I'll probably never know for sure.

Here's what I need to know: Is it possible for my fictitious character to be
diagnosed as an epileptic in less than a year, following several head
injuries? He has had a few gran mal seizures, and he experiences auras. If
it matters, he lives in Iraq, and the diagnosis of epilepsy will bring him
back to the states for proper medical treatment.

My experience covered a much longer time span. I want to maintain accuracy,
and if someone could suffer several incidents of head trauma and wind up
with the diagnosis of epilepsy in a year's time, this would work best. If
it's not possible, I'll adjust my story line so he's had numerous accidents
over a span of years.

Many thanks to anyone wishing to help with this project!

Dave

Sweet Music is here! The sequel to The Attaché.

Read about it here, including an excerpt:
http://www.authordavidbond.com/newest.php

"Like" David at his Facebook author page: David Bond
<http://www.facebook.com/pages/David-Bond/161496407291957>

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