On 1/26/2012 2:45 PM, Susan Wain wrote:
>
> I just came from one of my neurologists and she said that my strength
> and coordination need improvement and that I have to be careful around
> noise; no concerts, cannot be around alot of kids playing or inlaws
> screaming for hours, etc as....noise causes seizures which I didn't
> know. She said that noise induced migraines could be silent
> seizures. I have to go to a driving rehab to re apply for my license
> and I have to get retested again. I miss my old life and my freedom
> of driving. I am just mad, frustrated and very depressed.
>
> How do you guys handle this?
>
Susan, This is interesting. While I have not been to a concert since
1990, I might play the same music at concert level, via my headphones.
When I do that for an extended period of time, I will get a minor headache.
As for driving, when I first thought about getting a drivers' license, I
was told I had to be 'seizure free'(non-physically obvious seizures are
harder to deal with). By the time I was given the approval by the
state, I had changed my mind. Because there are too many people on the
road that should not be driving. My own 71yr.-old mother was diagnosed
with Fuchs Dystrophy in 2011. One time in the car, she drove over a
concrete median when she was going to drop me off at a metro station.
Instead of driving, I go pretty everywhere on my bike(Specialized Allez'
road racing bike), instead of using public transportation. I will use
public transportation in inclement weather.
Christopher
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