[epilepsy] Re: Does this sound like epilepsy???

 

Great advise Kate, thank you so much even though it wasn't directed at me :) We are going thru a tough time with my daughters episodes and its amazing how much encouragement one can get from here.

Thanks, Jamie
mom of Megan age 10

--- In epilepsy@yahoogroups.com, "katebruer" <kbenda83@...> wrote:
>
>
> Hi Dawn,
> I would recommend seeing more than one neurologist. I had my first grand mal seizure when I was 10, but was diagnosed until I was 26. When I was a kid, my parents talked to my pediatrician, but he said it was just fainting- even though it was grand mal.
> I had seizures when I was a student living in England. I went to the ER, but they only gave me a pregnancy test- I wasn't.
> When I was 21-24, I went through a period where I was having grand mal seizures every few months. I was living in Bulgaria where I first diagnosed, but when I moved to the states, the doctors here wouldn't use his diagnosis. In Bulgaria I had EEGs- sleep deprived, 24 hour, etc, EKGs, MRIs and CAT scans, but the Americans re-did them all. I was living in Pittsburgh, with world class medical hospitals, seeing a neurologist and she couldn't see the epilepsy on the Bulgarian tests or redone American ones. I didn't question it, I just figured the American doctors were better trained and had better resources (the Bulgarian MRI machine was the only 1 in the country, not bolted to floor and they didn't give earplugs). My husband took a new job, we moved again. I had more seizures and got a new American neurologist. I gave her the Bulgarian reports and she took one look and could see the abnormality. She ordered new tests, those tests were 5 years old by then and she put me on Keppra. I haven't had a seizure since.
> Bottom line: trust your gut. If you think something is wrong, you're probably right. It might not be epilepsy, but something is up. If you're not satisfied with your doctor's diagnosis, ask to see someone else in the practice or someone completely different.
> Good luck, I hope you get the answers and everything is under control.
> Kate
>

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