Jamie,
Just because a sz doesn't show on the EEG doesn't mean she doesn't have EP.
Quite a few of us have better luck with the brand name than generic.
Millie
----- Original Message -----
From: Jamie
To: epilepsy@yahoogroup
Sent: Tuesday, April 27, 2010 10:16 AM
Subject: [epilepsy] Re: where is everybody
My daughter Megan (9 years old) is the reason I joined. We are still trying to get a diagnosis. First the neuro said looked liked epi. but they have never showed on EEG. SHe only has them at night and the look like simple partial. They come in clusters sometimes as often as every cople of minutes and sometimes 45 minutes apart. She is on generic for Kepra. Each time we would increase the dose we had a couple of weeks without any, omce we had 13 weeks with out an episode. We thought okay we got it but they came back.
Her neuro is referring her to Stanford where they will look at sleep as well as seizures. Hopefully we can get some answers but at least she hasnt been having them night after night any more and her emotional helath and physical health has imporved so much since we started treating her.
Thank you all for this site. It really helped me especially at the beginning and continues to do so.
Sincerly,
Jamie
--- In epilepsy@yahoogroup
>
> Hello everybody,
> I open my mail every day and I was surprised that I have not seen any mails on the site for two days.I hope there is nothing wrong.
> Best wishes.
> Hanan
>
[Non-text portions of this message have been removed]
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