Re: [epilepsy] New here.

 

Mary Deloria,

Welcome to our group. That is a too bad when EP is not diagnosed (DX) immediately.
I had my 2 first szs 2 years apart and the Dr. thought that pregnancy and me didn't go together.

My first sz was when I was PG with my 2nd daughter and the 3rd when I was PG with my 3rd daughter.
We decided to have my tubes tied but 2 years later I had another sz. That took me 30 miles
away which at that time was the closest EEG. That told them immediately that I have EP, that I would
be on meds the rest of my life and that I wouldn't drive for a year. That was 48 years ago.

I then had 3 daughters 2, 4, and 6 plus a husband (now ex) and my girls are all in their 50's

The Dr. can now decide when you can drive again after a sz in my state.

I have been very fortunate. My last sz was 3 years ago. I have been on Dilantin and Phenabarb
for over 20 years.

Millie
----- Original Message -----
From: Mimi
To: epilepsy@yahoogroups.com
Sent: Monday, April 26, 2010 9:45 PM
Subject: [epilepsy] New here.

I am new to this group .I have Epilepsy.It went misdiagnosed from I was 12 to the time I was 19.When I was 12 I had Viral Encephalitis .It sent me from a quiet child,a/b student,who was in band(ya know the all American child)to a child who was given no chance of survival.If I survived I would never do the things i used to do .I wouldn't wall,talk or the basic tasks.I graduated from high school in the lower part of my class.Due to the encephalitis I got epilepsy.I am positive of this.I had a grand Mal seizure when I was a Senior in high school(again misdiagnosed previously )The Teacher asked my mom why didn't she tell her(the teacher) I had Epilepsy ?My mom and sister cried and said that They were told it was "All in her head".Thank God there was an understanding woman who gave mom a name of a Dr.My seizures go out of whack sometimes (this past November and December )I still have absence even under meds but there are somethings I wont knock.I am now 40 and in a relationship.There will only be nieces and nephews .I am sure agent orange played a part .Thanks for hearing my story.
Mary Deloria

[Non-text portions of this message have been removed]

__._,_.___

Reply to sender | Reply to group | Reply via web post | Start a New Topic

Messages in this topic (3)

Recent Activity:

• New Members 4

Visit Your Group

Just a friendly reminder: Please remember to sign your post and remember to clean up messages when you reply to them.  This is especially important if you are on digest.  This not only helps out the list owner but, it makes messages much easier to read when they arrive in our inboxes.

Switch to: Text-Only, Daily Digest • Unsubscribe • Terms of Use

.

__,_._,___