Wednesday, June 3, 2009

Re: [epilepsy] Re:seizures that others don't notice



Laura
You couldn't be more right. We think we are so bad off and in such bad shape until.... we hear someone else's
story or meet someone in a lot worse shape than ourselves.
I have had issues with different levels , find as long as stick to the same one and not go running to the doc
for every little thing, it is ok and can actually live not to bad. We all have breakthroughs now and again.
Some maybe different types, but that is what epilepsy is and if we get our knickers tied up in a big knot, and
take it cool, letting it run its course, there is always a light at the end of the tunnel.
Julie
Julie Hope
epilepsyhealth@sasktel.net
http://www.2betrhealth.com
----- Original Message -----
From: "Laura Gresham" <greshamlaura@yahoo.com>
To: <epilepsy@yahoogroups.com>
Sent: Wednesday, June 03, 2009 9:39 PM
Subject: Re: [epilepsy] Re:seizures that others don't notice

I think we all have issues that are hard to deal with, just on different levels. There's always going to be
someone else who's case will humble us and make us feel grateful for what we must deal with. That being said,
shouldn't we support each other no matter what? Laura

________________________________
From: Tammy Wolfgram <tammy@maccetera.com>
To: epilepsy@yahoogroups.com
Sent: Wednesday, June 3, 2009 12:23:02 PM
Subject: [epilepsy] Re:seizures that others don't notice

Hi Uhura,

Speaking as the mother of someone with generalized tonic clonic
seizures, I think you are very fortunate to have seizures that others
don't notice. No sore muscles, cuts or abrasions, black and blue
marks or broken teeth. Your risk of falling or drowning or other
serious injury are also very low. I understand that you feel people
may wonder "what's wrong with her" when you stand and do nothing for
a period of time, but in the grand scheme of things that is not so
bad. My daughter was taunted and made fun of in middle school because
she had several seizures there. I would have given anything for her
to only have seizures that no one else noticed, to be honest with you.

Please don't take offense. I just wanted to give you the perspective
from the other side.

Be happy with yourself.
Tammy

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