we go round and round with this topic but I just wanted to share that
my daughter Julia was recently switched from one Lamictal brand to
another and back and through it all her seizures got very bad. I
requested our neuro give us a perscription for trade Lamictal and he
did. It will be 2 weeks Saturday since we started the Trade and
Julia has been seizure free for 4 days. Julia typically has 1 - 3
seizures a day so this is amazing.....
On Wed, Jun 3, 2009 at 1:00 PM, uniquepnk tds.net <Uniquepnk@tds.
>
>
> Elizabeth,
>
> Thank you for the information. I do take some vitamins, but I don't know if
> there is enough of it in the kinds I take. Glad the side effects are not so
> bad with your daughter. I will have to check and see if it helps any.Take
> care.
>
> Tammy
>
> On Mon, Jun 1, 2009 at 9:55 PM, Elizabeth Last NameSilva <
> elizabethkaron@
>
>>
>>
>> My daughter has been on Keppra the past two years her epitologist put her
>> on vitamin b-6 to counter act the mood swings and it works great. She has
>> ben on tegratol adn depakote as well but with much side effects.
>>
>>
>>
>> ____________
>> From: uniquepnk tds.net <Uniquepnk@tds.
>> To: epilepsy@yahoogroup
>> Sent: Monday, June 1, 2009 8:45:44 PM
>> Subject: Re: [epilepsy] Re: Lamictal -- Brand Name vs. Generic (Rx Rate
>> Increases) for EP
>>
>> Molly,
>>
>> The Keppra can cause mood swings too. My boyfriend could tell the
>> difference
>> in me when I went off of it the other day. It is probably a little of
>> both,
>> but the Keppra has its own deal of side effects too. It is hard to tell
>> which medicine causes problems when you are on more than one of them. Hope
>> you find some medicine and a dose that is good for him. Take care.
>>
>> Tammy
>>
>> On Sun, May 31, 2009 at 10:50 PM, pmvdl@att.net <pmvdl%40att.
>> pmvdl@att.net <pmvdl%40att.
>>
>> >
>> >
>> > ---
>> >
>> > My son is on the generic Lamictal.The insurance co made us switch about
>> > 2
>> > months ago. it is going ok. We had alot of issues with the generic
>> Keppra,
>> > so the dr did the paperwork so we could be on name brand. We are having
>> > issues with Phenobarbital. We have been on that one since mid April, but
>> we
>> > are seeing all kinds of mood swings, tiredness etc.
>> >
>> > Molly
>> >
>> > In epilepsy@yahoogroup s.com <epilepsy%40yahoogr oups.com> , Jeff
>> Stewart
>> > <jeffro7946@ ...> wrote:
>> >
>> > >
>> > > Since we are on the topic of lamictal the nero wants to start my
>> daughter
>> > on it i am a little nervous cause of the possible side effect
>> > >
>> > > Keena
>> > >
>> > >
>> > >
>> > >
>> > > ____________ _________ _________ __
>> > > From: uniquepnk tds.net <Uniquepnk@. ..>
>> > > To: epilepsy@yahoogroup s.com <epilepsy%40yahoogr oups.com>
>> > > Sent: Saturday, May 30, 2009 12:15:31 PM
>> > > Subject: Re: [epilepsy] Lamictal -- Brand Name vs. Generic (Rx Rate
>> > Increases) for EP
>> > >
>> > >
>> > >
>> > >
>> > >
>> > > Edna,
>> > >
>> > > Welcome to the group. I was allerigic to Lamictal, so I am taking
>> > different
>> > > kinds of medicine, but I have had problems with different kinds of
>> > medicine
>> > > I have taken. I got switched to the generic Keppra a few months ago
>> > > and
>> > had
>> > > to be switched right back a month or somewhere in that time period. I
>> > > started having seizures by the next day after the swicth. Generic
>> > > stuff
>> > > might claim to be as good as the brand name stuff, but I just don't
>> think
>> > > they are.I know the brand medicine is more expensive, but it does seem
>> to
>> > > work better if you start out on it. If they give the generic to start
>> > with
>> > > maybe would do better than to switch from the brand name to the
>> generic.
>> > I
>> > > hope you don't have any problems with it, if you have to switch. Take
>> > care
>> > > and if you need anything write anytime.
>> > >
>> > > Tammy
>> > > On Sat, May 30, 2009 at 12:07 AM, Edna Hopper
>> > > <ednawallacehopper@ yahoo.com>wrote:
>> > >
>> > > >
>> > > >
>> > > >
>> > > > I'm new to the group, and appreciate your feedback.
>> > > >
>> > > > After 13 years of experiencing
>> > > > partial seizures (diagnosed by multiple neurologists as "panic
>> > > > attacks"), I experienced a grand mal seizure 5 years ago. I was
>> > immediately
>> > > > put on 100mg of brand-name Lamictal, and have not had any seizures
>> > since. I
>> > > > just found out that my Rx costs for Lamical have increased 600%
>> > > > (from
>> > $100
>> > > > / 90
>> > > > days to $615) because the mail order Rx company now offers the
>> generic
>> > for
>> > > > Lamictal. They insist that the generic for Lamictal is exactly the
>> same
>> > > > formulation as the brand name, but I'm suspicious. I've read about
>> > > > seizure-free patients unknowingly being switched from the brand name
>> to
>> > the
>> > > > generic, then suddenly suffering seizures. My doctor is adamant that
>> I
>> > > > remain on the brand name, as he, too, is concerned that the generic
>> > > > formulation is different, and feels it's too risky to switch to the
>> > generic.
>> > > >
>> > > > I have petitioned for an appeal with the mail order Rx company with
>> > > > a
>> > > > letter from my physician, as well as my own impassioned plea, and
>> have
>> > > > respectfully asked that I be allowed to continue with the brand name
>> at
>> > the
>> > > > same cost as before the rate hike. I am awaiting their reply.
>> > > >
>> > > > I'm hoping
>> > > > someone from the group might have insight into 1.) their own
>> experience
>> > of
>> > > > switching from brand name Lamictal to the generic and the outcome;
>> 2.)
>> > if
>> > > > they've had experience / success appealing the Rx costs to their
>> health
>> > > > insurance company / Rx company; and 3.) if they have a contact at
>> > > > GlaxoSmithKline. I believe some phara companies are offering their
>> meds
>> > at
>> > > > reduced rates to patients in need.
>> > > >
>> > > > I look forward to any insight you can
>> > > > offer.
>> > > >
>> > > > Thanks,
>> > > >
>> > > > Edna
>> > > >
>> > > >
>> > > >
>> > >
>> > > [Non-text portions of this message have been removed]
>> > >
>> > >
>> > >
>> > >
>> > >
>> > >
>> > >
>> > > [Non-text portions of this message have been removed]
>> > >
>> >
>> >
>> >
>>
>> [Non-text portions of this message have been removed]
>>
>> [Non-text portions of this message have been removed]
>>
>>
>>
>
> [Non-text portions of this message have been removed]
>
>
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