Millie,
I hope you receive this, I keep thinking I mess up sending messages, but thanks for hearing me. The name of the new study drug is called Carisbamate. I take 1 50 mg in the morning, a 100 mg morning and night. It seems to be working, but I also had a VNS put in me in 2001 after I crashed my car. I was able to drive for 10 years and out of no where, bang! After that my neurlogist said I was a good candidate for this study drug. Like I said hope you get this, I miss hearing others reponses about their experiences. Do you know anything about this medicine?
Thanks,
Carolyn
--- On Sat, 5/30/09, mylmy@bnin.net <mylmy@bnin.net> wrote:
From: mylmy@bnin.net <mylmy@bnin.net>
Subject: Re: [epilepsy] Phenobarbital
To: epilepsy@yahoogroup
Date: Saturday, May 30, 2009, 5:21 PM
Carolyn,
What is the name of the new study drug?
Millie
> Millie,
>
> My neurologist does have me on Keppra, Lamictal, and the new study drug
> that has been going on for about 5 years now. Being on those he said I
> could start lowering Phenobarbital a little at a time until I can get
> completely off. Dropping off of it has not increased my seizures, so maybe
> it will work.
>
> Carolyn
>
> --- On Fri, 5/29/09, mylmy@bnin.net <mylmy@bnin.net> wrote:
>
>
> From: mylmy@bnin.net <mylmy@bnin.net>
> Subject: Re: [epilepsy] Phenobarbital
> To: epilepsy@yahoogroup s.com
> Date: Friday, May 29, 2009, 9:02 AM
>
>
>
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>
> Carolyn,
>
> Is your Dr. putting you on another med while you are going off
> phenabarb, I hope?
>
> Millie
>
>> pmvd
>>
>> I wanted to let you know I have been on Phenobarbital since being
>> diagnosed which was 15 years old. I am now 47. When I was put on this
>> med
>> I was so tired I could not focus on my classes and took me forever to
>> get
>> my homework done. Thank goodness though, my neurologist has begun to
>> lower
>> it a little at a time to get me off. I think 32 years of it is plenty
>> for
>> me. Take care and good luck
>>
>> Carolyn
>>
>> P.S. I tried sending this message earlier in response but don't know how
>> I
>> guess. I am just a dimwit. Still can't figure what I am doing wrong.
>> Take
>> care of yourself
>>
>>
>>
>>
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>>
>>
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