Re: [epilepsy] hello.. new here

Wednesday, June 3, 2009

Re: [epilepsy] hello.. new here

Sandy,

Welcome to our group. That is quite a list of things to cope with!

I am supposed to be using a CPAP but I can't sleep long with it on.
So for now it is sitting beside my chair where I sleep. I can sleep
for 4 or 5 hours without it but only about 1 with it.

The last time I talked to the health care who furnished it for me--
they told me that It is mine. I own it. But for now I cancelled
the monthly calls of providing supplies .

Millie

> just realized I need to learn how to post.. did not mean to 'lurk'
> Joined for support as am a patient diagnosed with sleep disorders. i.e.
> sleep apnea, PLMD, PTSD, and narcolepsy, plus have some insomnia, FM. and
> menopause. Have gone to a local support group a couple years but that
> before I was diagnosed and many years ago. My goal is to help educate the
> public as well in some respects..
> I am also using a CPAP.
> Suspect I was born with one sleep disorder and the narcolepsy came on
> about puberty and the 3rd came on with the PTSD event from stress.
> Diagnosed in 2001 just before my mom died.
>
> Wondering why I am here? Ever visiting Neurologists in my past, but never
> a matching diagnosis.. I believe I have had long term intermitent?
> psychomotor partial complex seisures as this is the only explanation for
> some of my experiences. Some of the drugs I read about here I have been on
> in the past briefly.. I was once told that I do not have seisures because
> they do not occur often enough. Some of my experiences suggest different
> types of seisures.
>
> for now my online name is
> 'Sandy'
> Who is here?
>
> this is my primary email account,
> there are no aliases .. uhura102
> was my online account from long ago and hadn't been changed so people
> would remember it was me.. perhaps I was wrong
>
> so..
> I suffer From Fibromyalgia, Chronic Pain, Irritable Bowel Syndrome, Sleep
> Apnea, (borderline undiagnosed and trying not to be diagnosed Diabetes),
> Insomnia, RLS, PLMD, Narcolepsy, Memory Impairment, PTSD,
> (I don't know what RSD is but have RTS/rape trauma..), bad breath
> struggles/possibly due to celiac, Carpel Tunnel, Bladder Control
> Problems,...hoping THIS MAY BE THE PLACE FOR me!
> Don't expect any of my Family, Friends to Join & Contribute or be
> supportive. I Hope others benefit from my presence on this List...
>
>

__._,_.___

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