Michelle,
Welcome to our group. Although I have had EP for 48 years -- I have learned a lot from people here.
What kind of szs does your son have? What is his name?
Millie
----- Original Message -----
From: mlauchner
To: epilepsy@yahoogroups.com
Sent: Wednesday, December 23, 2009 8:31 PM
Subject: [epilepsy] New to the group
Hi, I'm Michelle. I'm from Gilbert, AZ and my son Aaron (almost 23) has epilepsy. I don't even know where to begin. This has been a life-long experience so obviously I won't bore you with almost 23 years worth of "stuff". Aaron currently takes three meds: Lamictal, Tegretol and the newest is Banzel (rufinamide). Not having much luck on this combination of meds. He also has been taking Clonapin for about a week for sleep but I think it's causing more seizures. He just had his second one today a few minutes ago. Aaron had surgery on his left parietal and frontal lobes March of '08 and it did virtually nothing for him. The one positive that came from the surgery is a definitive diagnosis: focal cortical dysplasia. Took 22 years and brain surgery to get that. Anyway, I'm just looking to be able to connect with people like myself (and my son). Right now we're seeing an increase in seizures and it's very frustrating. The only med he hasn't tried is Sabril and Aaron wants nothing to do with that. People who take Sabril are reporting losing their peripheral vision. Yeah now there's an appealing irreversible side effect! Anyway, I'd love to hear from anyone who can relate and I'm always, always open to suggestions! Thanks, God bless and Merry Christmas!
Michelle
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