Thanks again. We don't have any history of epilepsy being in our families. To the best of our knowledge, Libby developed her seizures after being hit in the head while in the swimming pool when she was around 11 yoa. Normally she doesn't have the GM; however, she has had them but not usually. From what I understand hers are more where she will daze off and seems to loose track of time or what has happened. I'll find out about what kind she has so I know.
My sister (Libby's mom) is a bit overwhealmed and has certain anxiety issues herself so I'm trying to be the "big sister" and help out without being interferring. She appreciates it but I still want to be very respectful of both her and Libby. My eyes have truly been opened as to what they have been going thru all these years. I guess I admitt I have taken it lightly (they are in AZ and I'm in CO). Wow, I am glad I am learning now. I'm hoping to get Libby to join the group but being on the computer much isn't something she does much.
Thanks for you info!
Linda
____________
From: Tristin Seagraves <tristinspike26@
To: epilepsy@yahoogroup
Sent: Sat, December 26, 2009 12:59:43 PM
Subject: Re: [epilepsy] Help Me Understand
Welcome to the group, Linda. We're a very caring and understanding group of people. Feel free to ask questions. What would you like to know?
A little about me... My name is Tristin. I'm 26 years old. I was diagnosed with temporal lobe epilepsy when I was 9. I had the surgery (a left temporal lobectomy) last year... Nov 12, 08. I've been seizure free since the surgery.
What kind of seizures does Libby have? We would love to have her join the group too.... She's more than welcome here.
Tristin Seagraves :)
--- On Sat, 12/26/09, Linda Manchester <pinksit@yahoo. com> wrote:
From: Linda Manchester <pinksit@yahoo. com>
Subject: [epilepsy] Help Me Understand
To: epilepsy@yahoogroup s.com
Date: Saturday, December 26, 2009, 11:12 AM
I joined your group to educate myself. My 33 yrs old neice Libby is an inspiration to me. She is married to a very supportive man with a 1st and 3rd grader. My heart hurts because she had the surgery almost 2 yrs ago and it hasn't helped. Last week she had a seizure while walking to pickup her kids from school, feel off the sidewalk. That night she had another one at the top of her stairs and fell face first down the stairs.
We don't know if she is going to be able to take care of herself if she is alone. I've joined the group to educate myself and try to help my sister find support and encouragement for Libby. Libby is such an inspiration because she is so positive, has a wonderful sense of humor thru it all and is pressing on.
Thanks in advance for any advice, direction, websites, etc.
Merry Christmas
Linda
____________ _________ _________ __
From: Steve <stephenpales@ yahoo.com>
To: epilepsy@yahoogroup s.com
Sent: Sat, December 26, 2009 8:47:58 AM
Subject: [epilepsy] Re: Your post surgery memory efforts-
Hi Doris,
My surgery was 3 years ago. I feel my memory is worse BUT, I'm also 52 which is a time when memory can begin to not be the same. Also, what was felt by me in the months after a successful surgery in stopping seizures for me was a gain in self confidence!! ! I totally changed going from the quiet one living under a rock to talking allot. As my self confidence grew, I became more outgoing also. But, as I changed, my memory didn't improve. So all in all I changed so much but my memory not improving made me feel as though my memory got worse, though it didn't. I was so positive my memory got worse that I asked my Dr. if I could have a neuropsycological evaluation to compare pre and post tests. I had the test, and it showed there where no changes in me because of surgery. I mean no memory changes (smile). I've always had a poor memory since my epilepsy began in 1975. Add electrical activity and side effects of the meds. and my memory went to sleep (smile).
Plus a learning disability all my life. I swear its worse but its just that how much I changed deep within in positives ways made me feel as though my memory got worse! That's how it went for me. I'm still seizure free to this day, yea, seizures can come back but for me so far so good (big smile)! Doris, if you would like emailing me you can at stephenpales@ yahoo.com If you would like talking by voice on IM or phone, let me know. Take care, keep a smile on your face!
Steve
--- In epilepsy@yahoogroup s.com, "DorisY" <dorisellen@ ...> wrote:
>
> If you have had the surgery for epilepsy and experience current
> memory difficulty post surgery, your suggestions used for this
> would be appreciated.
> I am just super concerned about weather this is getting worse
> with time, and how much worse is it going to get.
> Thanks for your time and Happy New Year too..
> Doris
>
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