Thursday, July 12, 2012

Re: [epilepsy] Something new

 

Celiac is VERY common in people with EP. Why they don't test us right away is beyond me!

Elizabeth

Sent from Samsung mobile

Liz Welker <lizard110366@yahoo.com> wrote:

>Kelly, my "fibromyalgia" was the direct result of Celiac Disease and extreme D deficiency. Look into those before you get too upset, especially if you have taken AEDs for years. It's all very treatable!!

>Good luck!!

>LIZ
>
>
>________________________________
> From: Kelly Porter <race_12_1@porterfam.us>
>To: epilepsy@yahoogroups.com
>Sent: Wednesday, July 11, 2012 9:26 PM
>Subject: [epilepsy] Something new
>
>
>

>
>Yesterday I had a visit with my epileptologist. She is excited that,
>over 4 years post right temporal lobectomy, I am returning to school to
>finish my bachelors degree. I am going to voc rehab because there is no
>way I can return to the career I had before getting sick.
>
>However, she did say that given my range of symptoms she thinks my
>regular neurologist needs to evaluate me for Fibromyalgia. Great, just
>what I need, a fifth neurological diagnosis! Having the diagnosis or
>not won't change my symptoms, but 4 neurological diagnosis is enough
>already. She told me to have more then one neurological diagnosis is
>rare, and I said to "I guess I hit the jackpot then" and she just
>laughed. I think epilepsy, chiari, 5th cranial nerve damage, and
>reynauds is a long enough list already! I have an appointment tomorrow,
>so we will see what he has to add to this.
>
>kelly
>
>
>
>[Non-text portions of this message have been removed]
>

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