I meant that just because a drug is referenced on some WEB site that we can discuss it with them but they may have more rationale as to why to not select it that we should be accept. I have a lot to learn about how and why one medication is chosen over another. I agree they make decisions sometimes and are wrong and I wish it was more of an exact science since I think they shoot from the hip to try things and we are the sample selections they have to work with. I don't know how much drug reps pushing their different medications effect this. I would like to believe it is not much. This is why I wanted to ask how many were taking newly developed medications and what was the basis to take them? As a single med, that may be one thing but who knows what interactions occur until they have patients try them with other meds. Seems like we are used at times and the results may be less control of our z's. If it works out, that may be good for us
but then you have to ask about long term effects and again they don't know.
CBI
--- On Fri, 5/1/09, Neecy <thinkingheads@
From: Neecy <thinkingheads@
Subject: Re: [epilepsy] Surveys
To: epilepsy@yahoogroup
Date: Friday, May 1, 2009, 5:08 PM
Why not second guess your doctor. They are often wrong and do not
know our children as well as we do, and also don't do the research
that we do!!! We are truly warriors when it comes to our children.
On May 1, 2009, at 6:51 AM, CBI wrote:
>
>
> Millie, thanks for this reference. This is a great link and
> provides much more detail and difference to the different seizures
> than I ever new about. It also includes information about how
> certain meds help control certain types of seizures. I'm not
> saying we should second guess our doctors but it is nice to know.
> Can we add this site to our links? I'd recommend it. Thanks again.
>
> CBI
>
> --- On Tue, 4/28/09, mylmy@bnin.net <mylmy@bnin.net> wrote:
> From: mylmy@bnin.net <mylmy@bnin.net>
> Subject: Re: [epilepsy] Surveys
> To: epilepsy@yahoogroup s.com
> Date: Tuesday, April 28, 2009, 2:53 PM
>
> There are 25 different kinds of szs
>
> There isn't one description of EP. It depends what kind of sz you
>
> have. I find a lot of info when I ask for Yahoo and then ask
>
> for Epilepsy Ontario. It will tell you different kinds of sz and
>
> what your body does when you have them. It will also tell you how
>
> soon you drive after a sz.
>
> June Hope from this group also has a website that gives a lot of
>
> info. It is in blue at the end of her letter.
>
> Millie
>
> > Is it safe to use an email link to that.. anyone answer these>
>
> >> my medication
>
> > none for epilepsy though took some in the past
>
> >> o medication & medicinal herbs
>
> > any ideas anyone have as I'd rather not take drugs if don't have
> to..
>
> >> o diet
>
> > what a mess
>
> >>what are the symptoms of epilepsy
>
> > let me take a wild guess.. portions of a person get frozen like a
> computer
>
> > monitor for a period of time
>
> >>how many types of epilepsy are there?
>
> > well over a 100.. though 3 categories are what I understand
>
> > they fall into.. Grand Mal, Absense and Psychmotor.
>
> >
>
> >
>
>
>
>
>
>
>
>
>
>
>
> [Non-text portions of this message have been removed]
>
>
>
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[Non-text portions of this message have been removed]
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