Cynthia,
My heart goes out to you. I've experienced several of the obstacles you have (and I used to teach reading and writing!) and boy are they obstacles. I'm certain many in here feel your pain. Friends are not around so much, nor are some family, when you are ill. You take the rough with the gifts and we all have deep, dark days. I am grateful to even come and read and learn here. (You have no idea how many words I've had to correct the spelling)
I was a little over a month w/out tonic/clonic or complex partials. Then, I went to a show with lights and loud music. Two clunkers in a row.
You just pick yourself up and start again after you've mourned the loss.
O and my doc is rapidly taking me off pheno. I was 120mg, down to 50. I'm sure when I see him in 6 weeks, I'll be off completely.
Take care of yourself. Millie is a great source of love and light. Know that bad days happen, but so do good ones. You are among those who share similar experiences. It truly is only w/in the person who has epilepsy that gets it. People might be caregivers, witness the seizures or whatever (docs) but unless you truly have it, no one quite understands. The stigma is always fun, too. (being sarcastic)
Much care to a wonderful human being,
Annie
--- In epilepsy@yahoogroup
>
> hello, i'm new with this group. typing poorly because of one therapy cat
> who won't leave my arms. i've been in other epilepsy support groups but
> haven't found what i need. i have temporal lobe epilepsy, which has made
> me a stranger among others since a young age. yesterday i had a strong
> complex partial and today i am in wonderland. walking is strange,
> foreign ang frightening. can anyone relate? Cynthia
>
> >
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> [Non-text portions of this message have been removed]
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