Friday, May 29, 2009

[epilepsy] Annie, thanx



Annie, this means so much to me to read your words. And I feel not
alone. Yesterday was a hard day. Today I am barely recovered and just
realizing I had no one safe to call and ask to spend time with me while
I was in a blur. I panic sometimes with fear of not being able to do the
normal things... afraid I'll turn the oven on and forget! Not be able to
put one foot in front of the other and walk my dog!

But I love your hopeful, and I think spiritual, words. Being grateful
for the good, counting blessings. Thanks for reminding me! I hope to
talk with you more. I'm hear for you, too, and anyone who needs a
listener or encourager. Life is ultimately good. Who was it who said
that people are pretty much as happy as they make their minds up to be?

Cynthia <><

transformation09 wrote:
>
>
> Cynthia,
>
> My heart goes out to you. I've experienced several of the obstacles
> you have (and I used to teach reading and writing!) and boy are they
> obstacles. I'm certain many in here feel your pain. Friends are not
> around so much, nor are some family, when you are ill. You take the
> rough with the gifts and we all have deep, dark days. I am grateful to
> even come and read and learn here. (You have no idea how many words
> I've had to correct the spelling)
>
> I was a little over a month w/out tonic/clonic or complex partials.
> Then, I went to a show with lights and loud music. Two clunkers in a row.
>
> You just pick yourself up and start again after you've mourned the loss.
>
> O and my doc is rapidly taking me off pheno. I was 120mg, down to 50.
> I'm sure when I see him in 6 weeks, I'll be off completely.
>
> Take care of yourself. Millie is a great source of love and light.
> Know that bad days happen, but so do good ones. You are among those
> who share similar experiences. It truly is only w/in the person who
> has epilepsy that gets it. People might be caregivers, witness the
> seizures or whatever (docs) but unless you truly have it, no one quite
> understands. The stigma is always fun, too. (being sarcastic)
>
> Much care to a wonderful human being,
> Annie
>

[Non-text portions of this message have been removed]

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