Saturday, May 30, 2009

[epilepsy] (epilepsy) Mixed subjects ....catchup time



Hi All and a big warm welcome to all newcomers of late. Do not be afraid to ask questions...if memory doesn't
serve you :( like it does me at times:) and you have forgot, ask the same one again. Many times if you need
to.

Maybe other give you me a label, but hey.....I can't find it on me! Many, many others have seizures or
similar and may be continuously, when I consider myself lucky as only have once in a blue moon. I to, because
I have epilepsy get non-epilepsy seizures if put in the right circumstance. Came close last night when got a
call that someone very close to us (distant family but close enough to call 'grandma') died. I had just been
checking the computer to get the date right as I write a letter to my daughter who past on very unexpectantly,
when we got the call. (It was 4months 2 days and exact time of morning) I went into shock for a moment and had
to watch myself rest of evening that seizure didn't occur. If had it would of been what they call
non-epilepsy.

I has been mentioned being difficult to get SI and disability and all those extras, as when go to apply I look
like a normal person off the street. They don't see what happens during the night, or that once in a blue moon
so am in that case put on a back burner for now. I know one person, that instead of having epilepsy put on the
form, got it for osteoporosis which they had. This is not lying to them as the meds was taken during their
epilepsy lifetime was the cause of this. Something to think about.

One thing that helped me get my epilepsy in liveable shape, was do not think of it as a disease!! I have just
some kind of a condition that attacks me now and again should I not look after myself. I are just the same as
anyone else who maybe gets a cold once and a while, instead I get a seizure once and a while. Or like that
person with diabetes where I take your blood every day and only get low and have a seizure, now and again.

Being on most every drug I could be put on, and every type seizure My body doesn't like changing types. It
just doesn't.
I have been on a lot of generic ones from the 'get-go', but maybe just taken more often during the day. Once
use to them it was ok. If started a drug as Brand, same thing after my body was use to it was ok. So for me it
was whatever I had started with and body use to, that kept seizures under control. In today's economy, a lot
are wanting to go to generic for good reason. Just be prepare for that change you may have to deal with in
the first few weeks.

This may be a mixture of subjects all in one, sorry folks, but don't get on here that often these days....will
call it catch up time ok. Remember just my 2 cents worth too. Think positive as you are among a big family
of friends all in the same boat. Want to write me .... do so any time.
Julie

Julie Hope
epilepsyhealth@sasktel.net
http://www.2betrhealth.com

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