OMG! U should definitely change neurologists! When I had my first seizure they thought it was "mental" and I should go see a psychiatrist, which I do as I'm on Paxil for OCD and he said I had a seizure. Even though I, too, was in a neuro ward for a week, it showed I had seizure activity, but this was after 4 doctors later who did not believe me and thought I was making it up. I do not have grand mal seizures, just "auras" and complex partial seizures. I found the right doctor and I am now on Trileptol and my seizures have lessened. Please talk to another doctor who does believe you and can prescribe the right meds for you. Do NOT give up - U are worth it and only U know how you are feeling and when your body does not feel right. This is not in our heads!
________________________________
From: yingchugma <mail@sarasvati-arts.co.uk>
To: epilepsy@yahoogroups.com
Sent: Friday, October 14, 2011 7:48 AM
Subject: [epilepsy] Re: pseudo seizures
Hi Laura,
I didn't have many seizures when i was pregnant either both times and with no medications. So many things have an effect on the brain so the amount and frequency of our seizures often goes up and down. However having had a period of time when you didnt have a seizure doesnt mean your brain isnt eileptic and that you are making it up.
These drs and nurses.. sometimes i wonder how they would feel if we started picking holes in the parts of their lives that are important to them - they'd be not so flippant i bet.
*hugs*
Emily
--- In epilepsy@yahoogroups.com, "gigglebug18" <little_laughing_laura@...> wrote:
>
> i have been diagnosed with epilepsy since i was 14(i am now 33)i started out having grand mal as i got older i developed other types. i have moved to a new state meaning a new neurologist she is conviced that i am only have pseudo seizures accusing me of "faking" since my diagnosis even though i have had multiple EEG's showing seizure activity. she had me do an 8 day stay in the epilepsy monitoring unit and since no seizures happened she said this proved her point and sent me to a pyschiatrist. i told her i have gone as long as 2 years without a seizure that it did not prove anything. also when i was pregnant for my daughter i went off all my meds the day i found out, no weaning whatsoever. has anyone else had this happen? because this is now in my medical records when i left her my new neurologist(after her) now believes this as well and doesnt want to do anything for me either, he says to continue with the pyschiatrist! even when i do have a
seizure they say it is not a real one just some underlying mental condition!
>
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