Hi Steve and all
I know I am late replying here but I have been on meds for
so long I wouldn't want to interfere with them they are
working so well and controling my szs so why tempt fait? If
it isn't broken don't fix it. Good luck.
Regards
Adrien
-----Original Message-----
From: epilepsy@yahoogroups.com
[mailto:epilepsy@yahoogroups.com] On Behalf Of Steve
Sent: Saturday, July 09, 2011 5:57 AM
To: epilepsy@yahoogroups.com
Subject: [epilepsy] Re: appt next week
Hi Kelly,
Best of luck getting off your meds and drivining again! By
my choice, I didn't want to reduce my meds. After surgery,
my Drs. told me after one year seizure free I could then
begin reducing my meds. I was on both Keppra and Trilptal.
He said he would first lower my Kepprs every 3 months which
would mean a full year to get off them. Iwas on on 3000mg
each day. So, would reduce 750mg every 3 months. Then, would
reduce some of my Trilptal over time, but not get me totally
of it. Meaning I would stay on it a bit.
Now, back in time 3 1/2 years. I was 1 year after surgery,
my life changed in such positive ways that words could never
describe the way life changed for me. So, I was at, do I
want to continue on my meds like before surgery, or begin
reducing the meds which would increase the chance of a
seizure? Hey, my life changed so much I couldn't even
imagine taking me back to having seizures again.
So, I didn't reduce my meds, I'm 4 years 7 1/2 months
seizure free still on all my meds the same dosage as before
surgery. Gosh I always think of what life would be reducing
my meds. I've been on different seizure meds since 1975.
But, I'm a knew Steve, my life has changed driving again,
being seizure free. The question I ask myself is "do I
really want to take the chance of simply having 1 seizure"?
I quickly say "no way"! o, just wanted to give you my
thoughts about it.
I wish you the vest of luck!!!! Please, could you keep us up
to date on how the decreasing feels as you go, I mean not
having the meds in your system, how your mind feels ect...
Best of luck, I wish you the best (smile)! Take care, keep a
smile on your face!
Steve
--- In epilepsy@yahoogroups.com
<mailto:epilepsy%40yahoogroups.com> , Kelly Porter
<kellyporter@...> wrote:
>
> I see my epileptologist on Tuesday. On the list to
discuss, med changes
> and driving. I am over 3 years post surgery, and would
love to get off
> meds if possible.
>
> She took me off Topomax a year ago, and I didn't have any
changes in my
> seizures. I am still on Trileptal and Lyrica (for seizures
and pain).
> I was also prescribed glasses for light sensitivity, and
this made me
> realize that some of what I thought were small seizures
were actually
> not, but rather my brains inability to process the changes
in light from
> things like fans and the stripes on moving blinds. What
gives me
> reassurance about trying a med change is that if I do have
seizures with
> a change, I would know the combination I am on now works,
so I could go
> back to it.
>
> Last time I saw here she pretty much told me driving was
up to me, so I
> am going to ask her for her OK for me to start driving
again! I know if
> we try changing/lowering my meds I will likely be putting
off driving
> for a few months until we know if the change causes any
activity. The
> thing is, we are spending over 300 a month to get my meds,
and if I can
> go off of them safely I would love to do that! Granted,
$300 is a lot
> less then we were paying 2 years ago, when it was over
$800, but still,
> $300 is a lot of money.
>
> I am pretty excited about the prospect of going off/taking
less meds.
>
> Kelly
>
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