[epilepsy] FW: Child with TSC to Appear on the CBS Early Show and in People Magazine this week

 

Aina & Pat DeLorenzo

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From: Tuberous Sclerosis Alliance [mailto:Info@tsalliance.org]
Sent: Tuesday, August 23, 2011 12:08 PM
To: Aina DeLorenzo
Subject: Child with TSC to Appear on the CBS Early Show and in People
Magazine this week

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Child with TSC to Appear on the CBS Early Show
and in People Magazine This Week

<http://ecommunity.tsalliance.org/NETCOMMUNITY/view.image?Id=3438> Evan
Moss is a 7-year-old boy with tuberous sclerosis complex (TSC) who came up
with a unique solution to help himself. His family made the decision to get
a seizure dog for Evan from 4
<http://ecommunity.tsalliance.org/NETCOMMUNITY/page.redir?target=http%3a%2f%
2fwww.4pawsforability.org%2f&srcid=26099&srctid=1&erid=2386948> Paws for
Ability and with that decision came a $13,000 fundraising commitment to
offset the training cost. Evan wrote a book,
<http://ecommunity.tsalliance.org/NETCOMMUNITY/page.redir?target=https%3a%2f
%2fwww.createspace.com%2f3626033&srcid=26099&srctid=1&erid=2386948> My
Seizure Dog, and the proceeds will go to the training and care of his dog.

The publicity surrounding his book brought a national community together
with an outpouring of support and donations, which helped Evan surpass his
fundraising goal. As a result, Evan's efforts also helped several other
children reach similar goals with 4
<http://ecommunity.tsalliance.org/NETCOMMUNITY/page.redir?target=http%3a%2f%
2fwww.4pawsforability.org%2f&srcid=26099&srctid=1&erid=2386948> Paws for
Ability.

Evan's parents, Rob and Lisa Moss of SeizureTracker.com
<http://ecommunity.tsalliance.org/NETCOMMUNITY/page.redir?target=https%3a%2f
%2fwww.seizuretracker.com%2f&srcid=26099&srctid=1&erid=2386948> and
co-chairs of the TS Alliance of Metro DC, said they are in awe of the
generosity of so many people and Rob explained, "Having a seizure dog is
going to be life changing and life saving for Evan."

Evan's story will be featured on the CBS
<http://ecommunity.tsalliance.org/NETCOMMUNITY/page.redir?target=http%3a%2f%
2fwww.cbsnews.com%2fsections%2fearlyshow%2fmain500202.shtml&srcid=26099&srct
id=1&erid=2386948> Early Show on Thursday, August 25 and will also appear
in the next issue of
<http://ecommunity.tsalliance.org/NETCOMMUNITY/page.redir?target=http%3a%2f%
2fwww.people.com%2fpeople%2f&srcid=26099&srctid=1&erid=2386948> People
magazine, available Friday, August 26.

<http://ecommunity.tsalliance.org/NETCOMMUNITY/page.redir?target=https%3a%2f
%2fecommunity.tsalliance.org%2fNETCOMMUNITY%2fSSLPage.aspx%3f%26pid%3d186%26
srcid%3d186%2520&srcid=26099&srctid=1&erid=2386948> Follow this link to
subscribe to future news from the TS Alliance.

Tuberous Sclerosis Alliance
801 Roeder Road, Suite 750
Silver Spring, MD 20910
800.225.6872

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