Re: [epilepsy] Fw: [] Sleep Study

 

Thanks Elizabeth
----- Original Message -----
From: elizabeth
To: epilepsy@yahoogroups.com
Sent: Thursday, May 19, 2011 8:04 AM
Subject: Re: [epilepsy] Fw: [] Sleep Study

Millie,
It came through!

elizabeth

Sent from Samsung mobile

Millie Myers <mylmy@gogreencroft.net> wrote:

>Kathy,
>
>This went into my junk mail so I am trying to forward it to you.
>We'll see if that will go thru. Millie
>----- Original Message -----
>From: Millie Myers
>To: epilepsy@yahoogroups.com
>Sent: Thursday, May 19, 2011 1:49 AM
>Subject: Re: [] Sleep Study
>
>Kelly,
>
>I've had 2 sleep studies and I never went off my meds.
>With both I ended up with a C-PAP machine to use when
>I sleep. I don't use either of them anymore because I sleep
>better without it.
>
>We have a Sleep Study building where you go to sleep all
>nite. You are connected to wires at different parts of your
>body. If you need to go to the bath room during the night--
>you just wave your arms and they will come in and disconnect
>from the machine. And connect you again when you come
>back to bed. They are watching you all nite.
>
>The second nite they have you connected to a C-PAP machine
>to figure out how to set the C-PAP machine.
>
>The last time the technician had been an EEG tech and she told
>me the next morning that she could see the spikes that show on
>an EEG machine but I didn't have a sz and I didn't go off my meds.
>
>In my case -- EP had nothing to do with the sleep study. An EEG
>and a sleep study are complety different and have nothing to do with
>each other. For an EEG the 22 wires are attached only to your
>head. For the sleep study the wires were attached all over my
>body.
>
>And I never went off my meds. I take 3 - Dilantin 100 mg Mon,
>Wed and Fri -- and 4 the other days plus 4 - 30 mg phenabarb
>a day. I have been on these for over 20 years. My last sz was
>over 4 years ago.
>
>Millie
>
>----- Original Message -----
>From: Kelly Porter
>To: epilepsy@yahoogroups.com
>Sent: Wednesday, May 18, 2011 6:25 PM
>Subject: Re: [epilepsy] Sleep Study
>
>It sounds like you need an epileptologist. Theya re neurologists who
>specialize int he treatment of epilepsy. You can find one in your area
>by going to http://www.naec-epilepsy.org/ and choosing the locator
>tool. Sometimes you need a referral.
>
>Kelly P
>
>On 5/18/2011 2:58 PM, Kathy wrote:
>> Thank you so much Kelly.
>>
>> They are calling it a sleep study, but telling me they want to induce seizures.
>
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>
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>
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