Sunday, May 3, 2009

Re: [epilepsy] Re: "serious" side effets



Katrina,

I am new to the EP world and don't have it myself but, my almost
2 year old daughter does so, I can't speak from experience but, I
would like to suggest that you call the drug company and ask. I am
frequently on the phone with the makers of Julia's medications. I
hope things get better soon.

Wendy

On Sun, May 3, 2009 at 11:53 AM, katrini24 <katrini24@yahoo.com> wrote:
>
>
> --- In epilepsy@yahoogroups.com, "gaelic_darkwater" <gaelic_darkwater@...>
> wrote:
>>
>> I've been trying to find an answer to this for several days and can't seem
>> to get a real answer anywhere, so I'm hoping someone here has experience
>> with this or knows someone who does and can give me an answer...
>>
>> I'm having a LOT of problems with the side effects from the phenytoin. I
>> looked the medicine up online and the side effects are mostly listed as
>> "serious", such as loss of balance, and dizziness, although I also have
>> blurred vision and EXTREME fatigue. (I have slept for DAYS at a time.) I
>> also can't type anywhere NEAR as easily as I once did and frequently
>> misspell words or even forget words entirely. Not too long ago I stood in my
>> kitchen for nearly an hour struggling to remember what the big silver box
>> was and how in the world it was used. It was the microwave, which I use
>> every day.
>>
>> So what I need to know is, when they say "serious" how serious is it? Am I
>> risking serious long-lasting health problems (which I really can't afford
>> added to these seizures) or do they just mean that these are seriously
>> irritating? What should I do? I can't get to my doctor for weeks still.
>>
> Years ago my doctor prescribed me carbratrol. I had so much in my system
> that I had blurry vision, natious, I couldnt even walk I was so dizzy. I
> only felt like this after I took my medicine. After I threw up all that
> stuff went away. Your not alone. If I were you I would see your doctor. The
> prescribed me the carbratrol got sued. Please let me know what happens.
>
> Katrina
>
>

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