Pat,
It sounds like bright flashing lights triggers a sz for you. It's
good your son was so observant.
Millie
> Saw my Neurologist this afternoon for my follow up explaining how just
> before I left for her visit I was playing a CD on my computer and ya know
> how those skins on that Media Player come up with all the various wild
> colors and shapes, etc? Well my son and I were clicking thru them when
> this really cool psychedlic pattern came on and boy oh boy, it was like it
> snacthed and dragged me in to my PC!
> My son said to turn it off so I did, but I tell ya - had I continued to
> watch this almosty strobe-like display of colossal colors, I can only
> imagine what'd happened.
>
> As most of you know, I haven't been officially diagnosed with EP yet altho
> my Neuro had written in her notes as well as told me she suspects absence
> and frontal lobe sxs.
>
> Today her notes say "psychomot Ep-not intract: uncontrolled - uncertain
> etiology."
> Wtf???
> Hahahaha.
> I looked it up and seems she's referring to temporal lobe epilepsy, i.e.,
> TLE?
>
> She gave me an Rx for Trileptal but when I got to CVS, it was way too
> expensive [I am self pay] so they're gonna fax asking her for another med.
>
> Since I cannot afford the 24 hour EEG and both my EEGs were normnal, I
> imagine she's relying on my symptoms and episodes.
> I wonder because I filed for social security disability last year for
> other illnesses; and subsequently these seizures surfaced. So if indeed I
> do have EP, dangit, I want it written clearly so the SSA and my Attorneys
> can deciper thru the medical jargon - lol. Not only that, I really wanna
> know what's wrong with me and how to treat it!
>
>
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