Hello
My name is Robbie, I'm 47 and have had temporal lobe epilepsy since age 11. My seizures have never been completely controlled. I have not been happy with most of the neurologists I have found in my area because they really didn't seem to want to treat epileptics to be honest. I recently found an epileptologist who I feel knows and cares about what he is doing. He ran a battery of tests on me one of which included 5 days of video monitoring with eeg. I had 4 "episodes" which the nurses saw while I was in the hospital. When the Dr viewed the eegs he said there were no change in the brain waves at the time of the seizure activity for all four of them. He said it was obvious I had epilepsy caused by cortical dysplasia but the episodes I was having were not caused by the epilepsy. The episodes the nurses described were what I and my family had always thought were part of my seizures. I had heard of psycho seizures before but didn't realize some of mine were. Have any one you ever had seizures that were not epileptic in nature with your epileptic seizures? How do I tell them apart?
DX: Epilepsy caused by cortical dysplasia
My medications include 600mg carbatrol, 1500 mg keppra, 600mg lamictal, and 1mg lorazepam daily. I also have had several VNS over the last 20 years including the latest I have now.
Robbie
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