[epilepsy] Hello, new group member-seizure questions

 

Hello my name is Lynn and I have been suffering from seizures over the past four years. My seizures have yet to be controlled and sadly I fall into the 30% patient group that medications failed to control my seizures. I have recently been dealing with a bout of reoccuring viral meningitis that has taken my seizures to a whole different level. I have had two seizures in less than a week that have been the most violent. I usually have auras or some sort of warning before the seizures come on but the past few times I have had 30 seconds, long enough to pick my cell phone or yell to my spouse who was at the other end of the house.

I am wondering if the virus can cause additional permanent damage making my seizures crank up to this new level and without much, if any warning? I was told that I need to see my Neurologist again since my seizures are far worse than what they used to be however I haven't responsed to normal seizure medications and have had zero luck when taking meds for them to work. I also suffer from Idiopathic Gastroparesis which in itself has caused vagus nerve and other nerve damage through out my body. It seems with my GP progressing and getting worse so is my seizures.

During my seizures from what I remember but more importantly what my spouse witnesse are the following:
aggressive shaking, tremors, arms-legs, head bobbing, drooling, sluring words that come out as mumbling, nausea, head pressure, fullness, tightness in throat, hands lock up, takes me a bit to be able to walk around again without assistance, frequent need to urinate-post seizure, feels like I ran a marathon and over all exhausted into the next few days. I have also noticed after the seizures its hard to make words out I want to say, I have to pause a lot when talking.

What type of seizure does this now sound like I am experiencing? I was told I have complex seizures but now my other specialists feels they have certainly changed and not for the better.

Sorry for the long winded email. I am very glad to have found this group and appreciate any words of encouragement or advice.
PS: I have zero family support. My Husband is my prime caregiver and source of support. My parents just say, "Oh they will go away, its just the virus however I have been diagnosed with seizure disorder for the past four+ years.

Lynn :)

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