Thanks Julie! I just returned from Thom Jefferson Hospital in Philly, PA. Unfort....I did not have a seizure the 8 days I was there. I had them try to bring one on by using strobe lights and hyperventilation but to no avail. They did find that I had fluid on my frontal lobe as long with seizure activity and unexplained brain waves. They have me on Trileptol. With all my meds, though, the dizziness has lessened and I have my concentration and reaction time back, Thank God. Unfort....I had two seizures in July. I have prob with memory but write everything down. When I was in the hosp.....I had to call my husband to Google the girls names on the 1980's comedy....Empty Nest as I was wracking my brain and the last time I did that I had the worst head pain in my life!!!!! But I am dealing and accepting and praying that things get better.
From: Susan Wain <susan.wain@yahoo.com>
To: "epilepsy@yahoogroups.com" <epilepsy@yahoogroups.com>
Sent: Tuesday, July 12, 2011 6:28 PM
Subject: [epilepsy] Seizures and Epilepsy
Do U necessarily have to have epilepsy if U have seizures?
From: Julie Hope <epilepsyhealth@sasktel.net>
To: epilepsy@yahoogroups.com
Sent: Tuesday, July 12, 2011 1:10 PM
Subject: Re: [epilepsy] sad 4 of july
Hi Susan
I just had to pop in here and say good morning - sun is shinning here but it is mighty hot out so am staying
inside. I most definitely know what you are thinking, but glad to see you are letting it all out. The
feeling of failing in everything you do can be the worst feeling ... but it can also make your seizures worse
(at least it did mine). I had the grand mal (with every other type before hand leading up to it) and until I
finally said to myself 'to heck with them, I don't need to drive right now it will come when meant to, and all
the other things that bothered me' I was a total wreck. What happens it is just like a balloon that bubbles
up in our gut and we hold everything in. One of these days it has to let go and the air finally lets go
whether it is slowly not.
All my life even in the deep foggy world I was in, I sure knew if someone said 'you can't do it/let me do it
for you so you don't hurt yourself/did you take your meds this a.m. (that was a big one that I hated the
most)/you can't get a job so don't even bother trying....all these things are hurtful to us and lower our self
esteem so much.
I called it being in myself being stubborn and one day just spoke my mind. Even though my hubby did not say
anything at the time, said later he was so proud of me. They really do mean the best for you and sometimes
this is the only way they can show their concern.
So remember you are NOT failing your hubby nor co workers...sometimes they just need a little more education.
Keep that big rainbow of smiles on your face there and take care.
((((Hugs))))
Julie
Julie Hope
epilepsyhealth@sasktel.net
http://www.2betrhealth.com
----- Original Message -----
From: "Susan Wain" <susan.wain@yahoo.com>
To: <epilepsy@yahoogroups.com>
Sent: Monday, July 11, 2011 4:13 PM
Subject: Re: [epilepsy] sad 4 of july
I can relate as I feel that I am failing my husband and co workers when I have aura seizures. I'm on meds but
will be goign in the hospital soon to get monitored 24/7 for a week and hopefully they will figure out Y, at
age 47 I started getting seizures. I cant drive yet and I feel like a failure
From: Mimi <mimiq_69@yahoo.com>
To: epilepsy@yahoogroups.com
Sent: Sunday, July 10, 2011 9:54 PM
Subject: [epilepsy] sad 4 of july
I was excited to celebrate the 4th with my family.It is visually alot of fun for everyone.Out of the blue I
had a seizure and have been racking my brain as to what I could have done to cause it.Gayle was in the kitchen
and asked me a question.Hearing no answer she came out to check on me.Mind you there was 2 other people in the
room.Neither one letting her know I was having a seizure.I guess she asked why she wasn't told i was having
one. She remained calm for me but was scared and mad at michelle. I came out of it and cried.Told Gayle and
rob I was tired.I was put in the bedroom to sleep for 2 hrs.All I wanted to do was cry .I feel I failed my
family.
I cant watch parade with flashing lights or fireworks unless they are still forms(pictures)
Sorry for my feelings today
Mary D
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