Kelly,
Thanks for sharing this. What was your career?
I am assuming that you don't have szs any more
since you said you will be driving again.
Have you found something to do to take the place
of working?
I'm so glad that your husband has been a good
support for you.
Millie
----- Original Message -----
From: Kelly Porter
To: epilepsy@yahoogroups.com
Sent: Saturday, July 23, 2011 7:11 PM
Subject: [epilepsy] over 5 yrs and still hurts (kind of a rant)
Sorry how long this turned out, I just know most of you will understand
at least some of this.
It's been 6 years since I first noticed something was wrong and thought
I was sick. I had a career I loved and was excellent at, had been
married nearly 8 years, and my son was 4. December of 2005 I finally
got sick enough that I couldn't work. A few months later, May 2006, I
had surgery for my first neurological diagnosis, chiari. December of
2006 I had my first grand mal, and finally got a complete diagnosis, I
had been having complex partials for over a year. March 2008 I had my
RTL. I've been married nearly 14 years now, and my son is 10. I am
still hurt that my life was stripped away from me. I still cry now and
then because I lost the life I loved so much. Now, I can't work, my
emotions are a wreck, my memory sucks. People will tell me "wow you are
almost back to who you were before you got sick." Problem, I don't see
that, I am still missing a part of me, both literally and figuratively.
It is nearly impossible to explain to others, and I don't even think my
husband understands it. It doesn't help that trying to go off the
tripleptal didn't go so well, my pain level went up so it is obviously
giving me some amount of relief so I am going to stay on it. I'm going
to get to start driving, but it almost feels like a consultation prize
compared to what I was trying to get.
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[Non-text portions of this message have been removed]
Sunday, July 24, 2011
Re: [epilepsy] over 5 yrs and still hurts (kind of a rant)
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Just a friendly reminder: Please remember to sign your post and remember to clean up messages when you reply to them. This is especially important if you are on digest. This not only helps out the list owner but, it makes messages much easier to read when they arrive in our inboxes.
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