Hi Susan,
Welcome to our group.Had you been diagnosed (DX)with EP before this?
Or was this your first sz?
I have never had a headache with a sz. I used to have migraine headaches
where I couldn't stand light or noise but they never came at the same time.
I was DX with EP 49 years ago. I then had 3 daughters 2, 4, and 6 plus a
husband -- now ex.
I had grand mal szs until about 20 years ago -- where I would pass out.
Now I have more like complex partials. I don't pass out but my daughters
tell me that my brain is scrambled for a couple days. Then like you turn on
a light switch my brain is working again.
I have been on Dilantin and Phenabarb for over 20 years. My last sz was
4 years ago. And I haven't had headaches for over 35 years. the only side
effects I have are swollen gums from the Dilantin. I see my dentist 4 times
a year to keep the tartar off my teeth. These are probably the 2 oldest meds--
but they work for me.
Everybody is different and you just have to try what meds work for you. Which
is a pain-- but that is the way it is.
Millie
----- Original Message -----
From: Susan Wain
To: epilepsy@yahoogroups.com
Sent: Thursday, June 16, 2011 5:47 PM
Subject: [epilepsy] New to Group
Hi......my name is Sue and in November, 2010, I think I had a seizure as I had a
thunderbult/ligthening headache and noise/light was not tolerable for the entire
day. When I went to drive to work, I couldnt' go over 40 when I normally can do
65 easily. I was slurring my words all day and was out of it like I was drunk
and was confused all day. I went to the hospital and my EEG showed slow brain
waves, and electrically irritated waves. I started taking Depakote, and strong
headache meds. However, I am now getting off of the Depakote as after 6 months,
I am having bad side affects. Now my headaches are coming back. My doctor is
going to put me on Neurontin as a transfer drug and then Lamictal to stabalize
my "auras" that I have where, at least once per month, I just stare and am out
of it for a minute. Some days I get panic attack symptoms and my head hurts
really bad and I hear things lounder than normal. IS WHAT I AM HAVING SEIZURES
as my doctors dont' know and I'm scared! Besides EEG's, MRI's and CT
scans.....how can you be sure and what is the right medication that treats
severe headaches with complex partial seizures? I want the least side affects -
no vision or hair loss
________________________________
From: wendy d <wdeb5@yahoo.com>
To: epilepsy@yahoogroups.com
Sent: Wed, June 15, 2011 11:40:34 PM
Subject: [epilepsy] Camp
Hi All,
I have not written in awhile, but I've been checking in and keeping (fairly)
updated on what's going on. I will be volunteering at a summer camp for a week
this summer as part of my "professional" (although I am still a student)
development. The camp is one for kids with chronic illnesses, a different
illness every week. Turns out, the ONLY week that is not full for female
counselors is epilepsy week. So I signed up. But...something makes me a little
anxious about this. I don't know why. It's definitely not about not wanting to
see people have seizures. It's something more selfish and personal, almost as
though I want it to be known that I am a person with epilepsy too...and yet I'm
not sure whether that is information I should be disclosing. Or why it matters.
I just wanted to kind of share my thoughts about this, because I'm not quite
sure what I'm nervous about, except that everything will be too close to home,
maybe.
Wendy
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