Hi Julie
Yes I'll find out. I'll have to write to my doctor in french
and he'll tell me the answers.
Regards
Adrien
-----Original Message-----
From: epilepsy@yahoogroups.com
[mailto:epilepsy@yahoogroups.com] On Behalf Of Julie Hope
Sent: Wednesday, April 20, 2011 5:15 AM
To: epilepsy@yahoogroups.com
Subject: Re: [epilepsy] Myoclonic or JME epilepsy
Hi Adrien
You say your appears to be changing as you get older? If you
ask about this and get any kind of answer let me
know. I have been getting the odd GM but more the partial
and all others whenever they feel like coming.
Some days are really good others are just the opposite. I
had it really good for years and just seems to have
started this past couple years again.
Julie
Julie Hope
epilepsyhealth@sasktel.net
<mailto:epilepsyhealth%40sasktel.net>
http://www.2betrhealth.com
----- Original Message -----
From: "Adrien Collins" <adriencollins22160@googlemail.com
<mailto:adriencollins22160%40googlemail.com> >
To: <epilepsy@yahoogroups.com
<mailto:epilepsy%40yahoogroups.com> >
Sent: Tuesday, April 19, 2011 1:52 PM
Subject: RE: [epilepsy] Myoclonic or JME epilepsy
Hi Julie
Yes I think you and I have very similar types of ep, mine as
I said was caused by encephalitis but that was nearly 40
years ago, well 37. ok thanks for the info, I will ask my
specialist when I eventually get to see one over here. I am
waiting to see my gp at the beginning of next month, he is
doing blood tests as I seem to have had more spells of ep
this year than normal, I usually only get 3 a year but I
have had about 5 so far this year, perhaps things are
changing as I get older.
Regards
Adrien
-----Original Message-----
From: epilepsy@yahoogroups.com
<mailto:epilepsy%40yahoogroups.com>
[mailto:epilepsy@yahoogroups.com
<mailto:epilepsy%40yahoogroups.com> ] On Behalf Of Julie
Hope
Sent: 19 April 2011 21:42
To: epilepsy@yahoogroups.com
<mailto:epilepsy%40yahoogroups.com>
Subject: Re: [epilepsy] Myoclonic or JME epilepsy
I am no Doctor Adrien, but that is what happens to me too.
My right side is always affected by the myclonic jerking,
headaches come there first, if my eyes are jerking it is the
right side. No matter what it is it always happens on the
right side first. I have Genereralized GM + all types, but
like I say it is just my opinion that must be the left side
that starts on first and then spreads all over.
Good question to ask specialist next time I see him. :) Take
care Julie p.s. should I get a good answer out of him, you
shall be the first to know.
Keep smiling
Julie Hope
epilepsyhealth@sasktel.net
<mailto:epilepsyhealth%40sasktel.net>
<mailto:epilepsyhealth%40sasktel.net>
http://www.2betrhealth.com
----- Original Message -----
From: "Adrien Collins" <adriencollins22160@googlemail.com
<mailto:adriencollins22160%40googlemail.com>
<mailto:adriencollins22160%40googlemail.com> >
To: <epilepsy@yahoogroups.com
<mailto:epilepsy%40yahoogroups.com>
<mailto:epilepsy%40yahoogroups.com> >
Sent: Tuesday, April 19, 2011 12:34 PM
Subject: RE: [epilepsy] Myoclonic or JME epilepsy
Hi
I have always had the jerking of my arm, I have been told
recently that it is miaclonic seizures, although my seizures
are well controlled with tegretol I still very occasionally
get the jurking arm, it is mostly my right arm, I think it
was the left side of my brain that was damaged by the
encephalitis which is the cause of the seizures. Does this
follow that my right side is worse affected.
Regards
Adrien
-----Original Message-----
From: epilepsy@yahoogroups.com
<mailto:epilepsy%40yahoogroups.com>
<mailto:epilepsy%40yahoogroups.com>
[mailto:epilepsy@yahoogroups.com
<mailto:epilepsy%40yahoogroups.com>
<mailto:epilepsy%40yahoogroups.com> ] On Behalf Of Julie
Hope
Sent: 17 April 2011 22:23
To: epilepsy@yahoogroups.com
<mailto:epilepsy%40yahoogroups.com>
<mailto:epilepsy%40yahoogroups.com>
Subject: Re: [epilepsy] Myoclonic or JME epilepsy
Hi Diana
I usually have the Myoclonic jerking of my one arm right
before a GM. Use to think it was only one of the signs of
one to come. They didn't hurt when had then, but I did have
one batch of them all by themselves for some reason without
any other seizure to follow and boy I tell you did they
hurt. I thought my arm was about to come out of it's arm
pit. Half aware and for some reason tried to pick up the
T.V. channel switcher but they were coming so fast and
furious it took both hands to do so. I got on a program that
really took my interest and don't know if it were the
interest in the program but the jerking slowly went away.
I am not on Keppra nor Lamictal and never been diagnosed
with Juvenile EP, it has always been the G.M. so not sure.
As to the spikes on EEGs I can say only the one time from a
new Neurologist have any seizures been shown on them, yet
have spent months in hospital at a time to get meds. right.
This is just my experience with them.
Best of luck and keep smiling
Julie
Julie Hope
epilepsyhealth@sasktel.net
<mailto:epilepsyhealth%40sasktel.net>
<mailto:epilepsyhealth%40sasktel.net>
<mailto:epilepsyhealth%40sasktel.net>
http://www.2betrhealth.com
----- Original Message -----
From: "Diana" <wind_decor@yahoo.com
<mailto:wind_decor%40yahoo.com>
<mailto:wind_decor%40yahoo.com>
<mailto:wind_decor%40yahoo.com> >
To: <epilepsy@yahoogroups.com
<mailto:epilepsy%40yahoogroups.com>
<mailto:epilepsy%40yahoogroups.com>
<mailto:epilepsy%40yahoogroups.com> >
Sent: Saturday, April 16, 2011 8:34 PM
Subject: [epilepsy] Myoclonic or JME epilepsy
I am curious to know if there are other people with
myoclonic seizures if they have been diagnosised with
Juvinile Myoclonic Epilepsy or a different type of epilepsy.
Currently I am on Keppra (2000) and Lamictal (450) each day.
My neurologist had wanted me to increase my Keppra to 3000
mg a day but I couldn't due to the severe headaches. Now he
wants to add Vimpat to the mix. He is letting me make the
decision. Because I am only having myoclonic seizures and
not have grand mals he believes that as long as I can live
with them I won't need to add a medication. But, from what I
read Vimpat it has side affects (dizziness, headaches) that
I am having when I increased Keppra.
Is JME diagnosised by an EEG. Does it show up as certain
spikes on the EEG compare to others. I have been diagnosised
with it, but also have partial and generalized epilepsy
This is the EEG report Wakerfullnes:
8 Hz activity over posterior head regions. Intermixed
diffuse 5-7 Hz activity. Focal independent spikes and sharp
waves over bilateral fronto-central regions. Maximal on
left. Less frequent atypical spike and wafe discharges.
Dysrhythmia gr. 3, focal bilateral fronto-central spikes and
sharp waves, and generalized atypical spike and wave
discharges. Could anyone here tell me what types of
functions might be effected with brain activity in the
frontal-central area and on the left side.
Is this the typical pattern seen in people that have JME? My
seizures have never been well controlled and I have been on
many types of medications. Currently I have problems with my
sense of direction, word recall and other speech problems
(possibly due to medication), headaches.
My seizures are typically in the morning, but can happen
anytime during the day or night. They usually come in
clusters. I notice is primarily affects my left arm, however
it can also be on the right side as well. I can fall forward
or backward with the seizures and have had petit mals and
grandmals that are caused from the myoclonic clusters.
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and remember to clean up messages when you reply to them.
This is especially important if you are on digest. This not
only helps out the list owner but, it makes messages much
easier to read when they arrive in our inboxes.
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------------------------------------
Just a friendly reminder: Please remember to sign your post
and remember to clean up messages when you reply
to them. This is especially important if you are on digest.
This not only helps out the list owner but, it
makes messages much easier to read when they arrive in our
inboxes.
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