I have and appointment with my epileptologist in June, and I want to
bring this up to her. I would like input from those of you who are post
surgery and have gone of off, or reduced, your meds.
A little background, I am just over 3 years post surgery, and still
having an average of 1 mild complex partial a week. Sometimes I have 2
in a few days, sometimes I go 10 days without one. Before surgery I was
having 3-6 a day on 3 meds. As of last June I was on 3 meds still, and
we dropped topomax from that list. I am now on Trileptal and lyrica.
The Lyrica also helps with ongoing pain issues. When I went off the
topomax my seizure activity changed very little, but the drop in side
effects was amazing!!!
I now wonder if it would not be worth trying to go off of, or at least
reducing, the trileptal. I am on 450mg twice daily. I also take 50mg
lyrica twice daily. I want to stay on Lyrica because it was prescribed
only in part for seizure activity, but mainly for pain issues. Dropping
the trileptal makes me nervous in some ways though. On occasion I will
miss a dose of my meds, which I take together twice a day. I usually
realize I have missed a dose because I will have strange symptoms. For
example the feeling my environment is moving when it is me moving, like
my head shaking. My hands will shake more as well. Do you think this
is seizure related, or withdrawal related from missing a dose? Would
like your input to consider.
Kelly
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