[epilepsy] Re: considering going off trileptal

 

Hi Again Kelly (smile),

Since your seizures aren't under full control, it really wouldn't hurt simply to try and see how your seizures are affected by reducing your med dosage per day. If you do try it, please be careful. If your seizures increase, then go back to the dosage you are on now. keep us up to date on if you try it or not. Simply trying it might bring peace to mind on if you should or not reduce your dosage. best of luck if you try it Kelly. Take care, keep a smile on your face.

Steve

--- In epilepsy@yahoogroups.com, Kelly Porter <kellyporter@...> wrote:
>
> Steve,
>
> Somehow I knew you would respond. I am considering it mostly to try it
> out. I want to see what would happen. I was nervous when she
> recommended I go off the topamax completely, but nothing really changed
> and the reduction in side effects was such a huge relief. I am kinda
> wondering what would happen if I tried reducing my trileptal. If it is
> even possible that it would have no effect, I figure it might be worth
> trying?? Scary, but in the long run wouldn't it be worth it to know?
>
> Kelly
>
> On 4/27/2011 8:38 PM, Steve wrote:
> > Hi Kelly,
> >
> > I have one simple question for you. Why decrease your dosage if you aren't seizure free?
> >
> > Yes, you are having less seizures now than before surgery which is great but still, your seizures aren't under control. Why decease the dosage?
> >
> > As you know, I had a LTL, just hit 4 1/2 years since surgery and still seizure free (giant smile). Drs. suggested decreasing my dosage but I said no, I don't want to. My reason for that is I'm not cured of epilepsy, and, seizure can come back. So, I want to stay on my meds. as back up in case a seizure try's to develop. Call me crazy but I know enough people who's seizures have come back years after surgery, one friend 10 years after surgery. So, no way will I decrease my meds because of how much my life has changed in positive ways since surgery.
> >
> > So, like I said, why decrease your dosage if you aren't seizure free? Yes, less seizures, not seizure free.
> >
> > By the way, I'm on Keppra and Trileptal.
> >
> > If you would like to email me or talk on the phone with me about it, please let me know, ok? Take care, keep a smile on your face!
>

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