I have to agree with Steve...usually Dr's don't want to decrease your dosage until you're seizure free (mine wants 2 years). BUT...maybe they can lower the dose, since you're also on Lyrica. I'm on Trileptal and haven't noticed any problems with it, but I also take Zonegran with it.
With this note of wisdom, I should go to bed, since I did have some seizures today!!
elizabeth
----- Original Message -----
From: Kelly Porter
To: epilepsy@yahoogroups.com
Sent: Wednesday, April 27, 2011 10:48 PM
Subject: Re: [epilepsy] Re: considering going off trileptal
Steve,
Somehow I knew you would respond. I am considering it mostly to try it
out. I want to see what would happen. I was nervous when she
recommended I go off the topamax completely, but nothing really changed
and the reduction in side effects was such a huge relief. I am kinda
wondering what would happen if I tried reducing my trileptal. If it is
even possible that it would have no effect, I figure it might be worth
trying?? Scary, but in the long run wouldn't it be worth it to know?
Kelly
On 4/27/2011 8:38 PM, Steve wrote:
> Hi Kelly,
>
> I have one simple question for you. Why decrease your dosage if you aren't seizure free?
>
> Yes, you are having less seizures now than before surgery which is great but still, your seizures aren't under control. Why decease the dosage?
>
> As you know, I had a LTL, just hit 4 1/2 years since surgery and still seizure free (giant smile). Drs. suggested decreasing my dosage but I said no, I don't want to. My reason for that is I'm not cured of epilepsy, and, seizure can come back. So, I want to stay on my meds. as back up in case a seizure try's to develop. Call me crazy but I know enough people who's seizures have come back years after surgery, one friend 10 years after surgery. So, no way will I decrease my meds because of how much my life has changed in positive ways since surgery.
>
> So, like I said, why decrease your dosage if you aren't seizure free? Yes, less seizures, not seizure free.
>
> By the way, I'm on Keppra and Trileptal.
>
> If you would like to email me or talk on the phone with me about it, please let me know, ok? Take care, keep a smile on your face!
[Non-text portions of this message have been removed]
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