Hi
I have always had the jerking of my arm, I have been told
recently that it is miaclonic seizures, although my seizures
are well controlled with tegretol I still very occasionally
get the jurking arm, it is mostly my right arm, I think it
was the left side of my brain that was damaged by the
encephalitis which is the cause of the seizures. Does this
follow that my right side is worse affected.
Regards
Adrien
-----Original Message-----
From: epilepsy@yahoogroups.com
[mailto:epilepsy@yahoogroups.com] On Behalf Of Julie Hope
Sent: 17 April 2011 22:23
To: epilepsy@yahoogroups.com
Subject: Re: [epilepsy] Myoclonic or JME epilepsy
Hi Diana
I usually have the Myoclonic jerking of my one arm right
before a GM. Use to think it was only one of the signs of
one to come. They didn't hurt when had then, but I did have
one batch of them all by themselves for some reason without
any other seizure to follow and boy I tell you did they
hurt. I thought my arm was about to come out of it's arm
pit. Half aware and for some reason tried to pick up the
T.V. channel switcher but they were coming so fast and
furious it took both hands to do so. I got on a program that
really took my interest and don't know if it were the
interest in the program but the jerking slowly went away.
I am not on Keppra nor Lamictal and never been diagnosed
with Juvenile EP, it has always been the G.M. so not sure.
As to the spikes on EEGs I can say only the one time from a
new Neurologist have any seizures been shown on them, yet
have spent months in hospital at a time to get meds. right.
This is just my experience with them.
Best of luck and keep smiling
Julie
Julie Hope
epilepsyhealth@sasktel.net
<mailto:epilepsyhealth%40sasktel.net>
http://www.2betrhealth.com
----- Original Message -----
From: "Diana" <wind_decor@yahoo.com
<mailto:wind_decor%40yahoo.com> >
To: <epilepsy@yahoogroups.com
<mailto:epilepsy%40yahoogroups.com> >
Sent: Saturday, April 16, 2011 8:34 PM
Subject: [epilepsy] Myoclonic or JME epilepsy
I am curious to know if there are other people with
myoclonic seizures if they have been diagnosised with
Juvinile Myoclonic Epilepsy or a different type of epilepsy.
Currently I am on Keppra (2000) and Lamictal (450) each day.
My neurologist had wanted me to increase my Keppra to 3000
mg a day but I couldn't due to the severe headaches. Now he
wants to add Vimpat to the mix. He is letting me make the
decision. Because I am only having myoclonic seizures and
not have grand mals he believes that as long as I can live
with them I won't need to add a medication. But, from what I
read Vimpat it has side affects (dizziness, headaches) that
I am having when I increased Keppra.
Is JME diagnosised by an EEG. Does it show up as certain
spikes on the EEG compare to others. I have been diagnosised
with it, but also have partial and generalized epilepsy
This is the EEG report Wakerfullnes:
8 Hz activity over posterior head regions. Intermixed
diffuse 5-7 Hz activity. Focal independent spikes and sharp
waves over bilateral fronto-central regions. Maximal on
left. Less frequent atypical spike and wafe discharges.
Dysrhythmia gr. 3, focal bilateral fronto-central spikes and
sharp waves, and generalized atypical spike and wave
discharges. Could anyone here tell me what types of
functions might be effected with brain activity in the
frontal-central area and on the left side.
Is this the typical pattern seen in people that have JME? My
seizures have never been well controlled and I have been on
many types of medications. Currently I have problems with my
sense of direction, word recall and other speech problems
(possibly due to medication), headaches.
My seizures are typically in the morning, but can happen
anytime during the day or night. They usually come in
clusters. I notice is primarily affects my left arm, however
it can also be on the right side as well. I can fall forward
or backward with the seizures and have had petit mals and
grandmals that are caused from the myoclonic clusters.
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