Hi Diana
I usually have the Myoclonic jerking of my one arm right before a GM. Use to think it was only one of the
signs of one to come. They didn't hurt when had then, but I did have one batch of them all by themselves for
some reason without any other seizure to follow and boy I tell you did they hurt. I thought my arm was about
to come out of it's arm pit. Half aware and for some reason tried to pick up the T.V. channel switcher but
they were coming so fast and furious it took both hands to do so. I got on a program that really took my
interest and don't know if it were the interest in the program but the jerking slowly went away.
I am not on Keppra nor Lamictal and never been diagnosed with Juvenile EP, it has always been the G.M. so not
sure. As to the spikes on EEGs I can say only the one time from a new Neurologist have any seizures been
shown on them, yet have spent months in hospital at a time to get meds. right.
This is just my experience with them.
Best of luck and keep smiling
Julie
Julie Hope
epilepsyhealth@sasktel.net
http://www.2betrhealth.com
----- Original Message -----
From: "Diana" <wind_decor@yahoo.com>
To: <epilepsy@yahoogroups.com>
Sent: Saturday, April 16, 2011 8:34 PM
Subject: [epilepsy] Myoclonic or JME epilepsy
I am curious to know if there are other people with myoclonic seizures if they have been diagnosised with
Juvinile Myoclonic Epilepsy or a different type of epilepsy.
Currently I am on Keppra (2000) and Lamictal (450) each day. My neurologist had wanted me to increase my
Keppra to 3000 mg a day but I couldn't due to the severe headaches. Now he wants to add Vimpat to the mix. He
is letting me make the decision. Because I am only having myoclonic seizures and not have grand mals he
believes that as long as I can live with them I won't need to add a medication. But, from what I read Vimpat
it has side affects (dizziness, headaches) that I am having when I increased Keppra.
Is JME diagnosised by an EEG. Does it show up as certain spikes on the EEG compare to others. I have been
diagnosised with it, but also have partial and generalized epilepsy
This is the EEG report Wakerfullnes:
8 Hz activity over posterior head regions. Intermixed diffuse 5-7 Hz activity. Focal independent spikes and
sharp waves over bilateral fronto-central regions. Maximal on left. Less frequent atypical spike and wafe
discharges.
Dysrhythmia gr. 3, focal bilateral fronto-central spikes and sharp waves, and generalized atypical spike and
wave discharges. Could anyone here tell me what types of functions might be effected with brain activity in
the frontal-central area and on the left side.
Is this the typical pattern seen in people that have JME? My seizures have never been well controlled and I
have been on many types of medications. Currently I have problems with my sense of direction, word recall and
other speech problems (possibly due to medication), headaches.
My seizures are typically in the morning, but can happen anytime during the day or night. They usually come in
clusters. I notice is primarily affects my left arm, however it can also be on the right side as well. I can
fall forward or backward with the seizures and have had petit mals and grandmals that are caused from the
myoclonic clusters.
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